Young Adult Members Conference: 23 July 2022

Young Adult Members Conference: 23 July 2022

Young Adult Members Conference: 23 July 2022 Itinerary Saturday 23 July, 9am to 3pm 9am-9:05am: Welcome. Acknowledgement of Country.  9.05am-9:15am: Introductions. Presenter: Carolyn Dews, IDFA CEO. 9.15am-9:45am: 3 x Young Adult Members share their health journey...
Oli’s Story

Oli’s Story

Oli is 14 years old and absolutely soccer mad. He plays for a club as well as an academy and has recently been to the National Cup in Sydney where his team came third in the Under 14’s category. Oli has lightning pace backed up by a massive goal scoring ability. Last...

2022 World PI Week (22-29th April)

2022 World PI Week (22-29th April) What is World PI Week?  World PI Week offers an opportunity to inform and educate health policy-makers, schools and families, and the general public about primary immunodeficiencies (PI) to drive the earliest possible diagnosis and...

2022 Rare Disease Day

2022 Rare Disease Day What is Rare Disease Day? Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Since its...