IDFA members collaborate with us for World PI Week 2021

IDFA members collaborate with us for World PI Week 2021 As part of our World PI Week 2021 campaign the team at IDFA collaborated with members who submitted their personal vision to produce a video. Their stories reflected upon the journey of diagnosis and quality of...

World PI Week: 22-29 April 2021

World PI Week: 22-29 April 2021 World PI Week is a global awareness campaign held annually between 22-29 April, bringing together stakeholders worldwide to create a ‘global movement’. The primary aims of World PI Week are to inform and educate policy makers,...

Rare Disease Day – 28 February 2021

Rare Disease Day – 28 February 2021 Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’...

Update to Member Services due to COVID-19

Update to Member Services due to COVID-19 Due to the impact of COVID-19 we have already started to change our Business Model so that we are able to provide our education, awareness and advocacy campaigns online, continuing the development of innovative programs for...