Gloria’s Story

Gloria’s Story

Gloria Hill – Mother of Sean Hill, aged 11, SCID Kid Extraordinaire Sean was our perfectly imperfect baby. Sean is my firstborn, a special young man with the New Year’s Day birthday of 1st of the 1st in 2011 (born at 11.42am). Sean proudly tells everyone that...
Lyn’s Story

Lyn’s Story

Lyn’s story I am happily married with two daughters and three beautiful grandchildren. Being a Grandma has become my favourite role now. I have been a nurse/midwife throughout my working life, commencing as a community midwife in 2001. This was a position I...
Oli’s Story

Oli’s Story

Oli Oli is 14 years old and absolutely soccer mad. He plays for a club as well as an academy and has recently been to the National Cup in Sydney where his team came third in the Under 14’s category. Oli has lightning pace backed up by a massive goal scoring...
Bianca’s family diagnosis

Bianca’s family diagnosis

Bianca’s family diagnosis Nathan and I have two inquisitive, adventurous and mischievous children, our son aged 10 and daughter aged 6. Oliver was a miserable baby, suffering from reflux and food allergies and often was unable to sleep for longer than an hour...
Jude and IRAK-4 deficiency

Jude and IRAK-4 deficiency

Jude and IRAK-4 deficiency Our son Jude was born in March in 2018. He was well until ten months of age. At this time, Jude was hospitalised for an infection. We believed at the time he was just unlucky. What followed was a blur of serious illnesses, an unhappy baby,...
Lisa’s journey to motherhood

Lisa’s journey to motherhood

Lisa’s journey to motherhood Trigger Warning: suicide. (If this story raises any concerns, please contact Lifeline Ph: 13 11 14)   For as long as I can remember I’ve wanted to be a mum. As a child, when people asked me what I wanted to be, the answer was...