Vanessa’s Story

Vanessa’s Story

Before her diagnosis, Vanessa was a relatively healthy child, however in her teens and early 20s she began getting sick more frequently and taking weeks or months to recover. Doctors kept prescribing antibiotics which did help to a degree but would prescribe them for...
Dale’s Story

Dale’s Story

Up until 2020, Dale was an active, fit, and healthy Australian (originating from England), who has a distinguished academic career – known globally for his work in disaster risk management, government policy, emergency services as well as being the Chairman of the...
Ben’s Story

Ben’s Story

Ben was introduced to the immunodeficiency community more than 15 years ago, when he met his wife, Lisa. In their youth, they spent time partying and enjoying life, relatively oblivious to the implication immunodeficiency can have on a person’s life. Although Lisa...
Jack’s Story

Jack’s Story

At three months old, Jack was hospitalised in Orange with a respiratory infection and was back there aged just seven months with pneumonia. Genetic testing at nine months of age provided Jack and his family with an insight into his recurring illness, when he was...
Gloria’s Story

Gloria’s Story

Sean is Gloria’s firstborn – a special young man with the New Year’s Day birthday of 1st of the 1st in 2011 (born at 11.42am). Sean proudly tells everyone that his birthday has all the Ones! Sean was a beautiful baby, with a personable nature and a ready smile....
Oli’s Story

Oli’s Story

Oli is 14 years old and absolutely soccer mad. He plays for a club as well as an academy and has recently been to the National Cup in Sydney where his team came third in the Under 14’s category. Oli has lightning pace backed up by a massive goal scoring ability. Last...