Supporting all Australians living with immunodeficiency
Receiving a diagnosis of primary or secondary immunodeficiency has an impact across all aspects of your day-to-day life. Living a life of multiple medical appointments, illnesses and medications is exhausting which is why IDFA offers a variety of ways to support you.
How can IDFA support you?
You’re not alone in this journey. No matter where you live in Australia, we can provide a community and the extra support you’re looking for through our membership program.
Social support – bringing you together with others affected by immunodeficiency
- Connect with the IDFA community in our private Facebook groups
- Patient linking – connect with others who have similar a PID/SID
- Member get-togethers supported by IDFA.
Emotional support – giving you opportunities to share your experience with others
- Practical advice on living with immunodeficiency
- Peer support programs.
Educational support – learn more about primary and secondary immunodeficiency
- Resources (e-resources and hard copy)
- Educational programs
- Patient meetings and conferences (in-person and online)
- Guidance on accessing NDIS and Centrelink services
- Guidance from our Medical Advisory Committee
- Group support.
Advocacy support – encouraging self-advocacy and advocating for you on key issues
- Through social media you can advocate for yourself by sharing our news, updates and educational graphics.
- IDFA advocates on your behalf influencing policy makers and government on key issues e.g. SCID newborn screening.
Awareness support – giving you opportunities to share your experience with others
- Community education programs
- Awareness campaigns throughout the year e.g. World PI Week, National Blood Donor Week, International Plasma Awareness Week
- Raising awareness in the medical and broader community by attending and speaking at special events encouraging acceptance of immunodeficiencies.