2022 World PI Week (22-29th April)

2022 World PI Week (22-29th April) What is World PI Week?  World PI Week offers an opportunity to inform and educate health policy-makers, schools and families, and the general public about primary immunodeficiencies (PI) to drive the earliest possible diagnosis and...

2022 Rare Disease Day

2022 Rare Disease Day  What is Rare Disease Day? Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Since its...

Managing your child’s return to the classroom

Managing your child’s return to the classroom This information has been provided by IDFA member, teacher and mum of two, Bianca. You can read more about Bianca’s story here.  Bianca is one of our friendly family support group moderators. If you are...