Mental Health, Stigma & Invisible Illness

Online via Zoom

Did you know people living with chronic medical conditions have a higher risk of depression? However mental health is treatable even when chronic illness is present. In this webinar we have a special guest speaker from Beyond Blue. Jeremy will share his journey of hope, recovery and resilience in the face of a mental health […]

Self-Advocacy

Online via Zoom

What is self-advocacy, why is it important and how do you ask for what you need? This webinar addresses these issues and more. We are thrilled to have Debra Brook from Disability Advocacy NSW join us for this presentation. Disability Advocacy NSW is one of the largest advocacy services with NSW coverage. The service provides […]

Nutrition & Healthy Lifestyle

Online via Zoom

Healthy lifestyle is essential for quality of life when living with PI. In this webinar we have Kate Battocchio, a dietitian and exercise physiologist from Diabetes NSW to discuss all things nutrition, the impact of lifestyle factors such as sleep and stress and the role of exercise in healthy living. Register in advance for this […]

Families & Relationships

Online via Zoom

When one or more members of a family live with a rare disease it has an impact on our relationships and family dynamics. In this webinar we address some of the common issues and suggest practical ways to help the whole family communicate better as well as some overall coping strategies. Louise Healy, the Education […]

Financial Burden of PI

Online via Zoom

The financial impact on families living with a PI is significant, particularly when there are multiple diagnoses in the one household. In this session we have Martin Derby, a financial counsellor to offer strategies and tips on managing your finances and available support. Register in advance for this webinar here: https://us02web.zoom.us/webinar/register/WN_78OR3VM6SAqaYnnQptKobA PLEASE NOTE: All event […]

A Wholistic Approach

Online via Zoom

We are thrilled to have special guest speaker Dr Brian Broom, from New Zealand, for our final webinar in the Primary Immune Education Program. This will be a very special presentation. Dr Broom is both a Clinical Immunologist and a Psychotherapist and internationally recognised as a leader in WHOLE PERSON healthcare, especially for people with […]