Member Stories

IDFA members share their experience of living with immunodeficiency.

Real People. Real Stories. In their own words.

Jack’s Story

Jack’s Story

Jack was hospitalised with a respiratory infection and then with pneumonia at seven months. Subsequent Genetic testing provided Jack’s parents with some insight when he was diagnosed with Wiscott-Aldridge Syndrome. Here is Jack’’s story…

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Gloria’s Story

Gloria’s Story

Gloria is the mother of 11 year old Sean. Sean is an amazing young man who underwent a stem cell transplant for X-SCID in 2012. This is her story…

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Oli’s Story

Oli’s Story

As a sporty teenager, Oli has struggled to accept his diagnosis and doesn’t want his health to affect his sport. Oli has shared his story in the hope that there may be other young people out there who feel the same. This is his story…

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Bianca’s Story

Bianca’s Story

With two children, both suffering from recurrent infections and various other illnesses, Bianca instinctively knew there was an issue. Her is her story…

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Lisa’s Story

Lisa’s Story

Lisa always knew she wanted to have children but thought it wasn’t possible due to her genetic condition Chronic Granulomatous Disorder (CGD). Here is her story…

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Sharon’s Story

Sharon’s Story

Married with three grown children, Sharon was living a full life when a medical event turned her life upside down. Hospitalised and in a life-threatening situation she eventually recovered only to receive a diagnosis of Common Variable Immunodeficiency (CVID). Here is her story…

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Share Your Story

If you’re an IDFA Member we would love to hear more about your experience with primary or secondary immunodeficiency. By sharing your story you’re empowering others living with a similar diagnosis. Fill in the form below to share your story.

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