Member Stories
IDFA members share their experience of living with immunodeficiency.
Real People. Real Stories. In their own words.
Vanessa’s Story
On her 23rd Birthday, Vanessa was diagnosed with Common Variable Immunodeficiency (CVID). This is her story…
Dale’s Story
Dale has recently become familiar with the IDFA community when displaying symptoms of an immune deficiency.
Ben’s Story
Ben was introduced to the immunodeficiency community more than 15 years ago, when he met his wife, Lisa. This is where the journey of a carer began for Ben…
Jack’s Story
Jack was hospitalised with a respiratory infection and then with pneumonia at seven months. Subsequent Genetic testing provided Jack’s parents with some insight when he was diagnosed with Wiscott-Aldridge Syndrome. Here is Jack’s story…
Gloria’s Story
Gloria is the mother of 11 year old Sean. Sean is an amazing young man who underwent a stem cell transplant for X-SCID in 2012. This is her story…
Oli’s Story
As a sporty teenager, Oli has struggled to accept his diagnosis and doesn’t want his health to affect his sport. Oli has shared his story in the hope that there may be other young people out there who feel the same. This is his story…
