Self-Advocacy Toolkit

Self-Advocate for Early Diagnosis and Treatment

Being diagnosed with an immunodeficiency can be a challenging and overwhelming journey. Often times it can take individuals years of frustrating appointments with doctors and specialists to receive a diagnosis.

However, it is important to remember that there are steps you can take to empower yourself during the diagnosis process. That’s why we have teamed-up with Blue Wren Advocacy to develop self-advocacy tools specifically tailored to individuals with immunodeficiencies who are navigating the diagnosis journey and the early stages after diagnosis.

Our self-advocacy tools are designed to help you communicate effectively with healthcare providers, understand your diagnosis and treatment options, and make informed decisions about your health. We believe that self-advocacy is key to receiving the best possible care, and we are committed to supporting you in this process.

We encourage you to explore our self-advocacy toolkit to help you navigate this challenging time. By using these tools, you can take an active role in your healthcare and ensure that your needs are being met. Remember, you have the power to advocate for yourself and to make informed decisions about your health.

Download the tools, and print-them-out or fill-them-in on your device to start your self-advocacy journey.

Patient Template Health Information Summary

Patient Template Medical Appointment Checklist

Patient Template Symptom and Treatment Diary

Template Advocacy Plan

Template Simple Advocacy Plan

Hear from some of our members about our Self-Advocacy Toolkit