Welcome to IDFA

Living with a primary or secondary immunodeficiency?
Do you find yourself looking for extra support and acceptance?
Let’s face it, living with an immunodeficiency impacts on all aspects of your health and lifestyle.

Awareness and Education

We offer a range of informative resources, host regular webinars and run various campaigns to increase awareness and education for Australians living with immunodeficiency.


Care and Support

We offer a range support initiatives including member meet-ups, group chats and peer mentoring for Australians living with immunodeficiency and their carers.


Driving Change - Advocacy

We advocate and support research into a range of issues significant to patients with primary and secondary immunodeficiencies.


Creating Awareness and Education

We offer a range of resources and run campaigns to increase awareness and education for Australians living with immunodeficiency.

Building Community: Care and Support

We offer emotional, social and practical support to Australians living with immunodeficiency through engagement events, support groups and peer-mentoring.

Driving Change: Advocacy

We advocate and support research into a range of issues significant for patients with primary and secondary immunodeficiencies.

About IDFA

IDFA is a national not-for-profit and leading peak body offering education, advocacy and awareness for Australians living with primary or secondary immunodeficiencies. In conjunction with our community-focussed model of care.

IDFA assists in achieving improved patient outcomes and quality of life. With the support of our medical advisory panel and through national and international relationships IDFA is a respected organisation within the medical and patient community.

Member Stories

Michelle’s Story

In 2020, when Michelle celebrated her 56th birthday she was finally diagnosed with Hypogammaglobulinemia after years of unknown causes to her being unwell. This is her story…

Vanessa’s Story

On her 23rd Birthday, Vanessa was diagnosed with Common Variable Immunodeficiency (CVID). This is her story…

Dale’s Story

Dale has recently become familiar with the IDFA community when displaying symptoms of an immune deficiency.

Get Involved

Pathways to Giving

You can make a difference in the lives of Australians living with a rare disease.

Become a Member

Join the IDFA community to access a range of resources, events and connect with patients and carers.

Latest Events

We’re developing a range of events for IDFA members. Keep watching our Events page for updates.

Latest Updates

Melbourne Member Meet-Up

Melbourne Member Meet-Up

In early December, we were delighted to host our Melbourne member meet, uniting numerous individuals for connection and learning. 'Blossoming Together' was our focus as it...

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The IDFA has been a great way to connect with other families with similar experiences, which has allowed access to a wealth of knowledge. The IDFA annual conference was also an amazing opportunity to learn and provided so much information. The IDFA has offered so much support, including Carers' events and resource material, which are great to give to kids' schools. Their Facebook groups have been a great place to ask questions and advice. So pleased to have found the IDFA, and would 100% recommend it to anyone seeking advice, support, information or resources.

Javeria, NSW

When I got sick in 2011 I felt so alone, I had never heard of CVID. Then it was recommended to contact IDFA. I found people all over Australia that were the same as me. It has been a godsend.

Beth, VIC

My name is Row and I am from NSW. After years of recurrent infections saw an amazing new immunologist who diagnosed me with a rare primary immunodeficiency. I found IDFA via Google and have found the support and resources from IDFA amazing. IDFA very quickly sent me a pack of great resources and also some resources for my GP. The Facebook group has been great, have learnt so much and receiving a phone call to check in made me feel supported and welcomed.

Row, NSW