Welcome to IDFA

Living with a primary or secondary immunodeficiency?
Do you find yourself looking for extra support and acceptance?
Let’s face it, living with an immunodeficiency impacts on all aspects of your health and lifestyle.

Awareness and Education

We offer a range of informative resources, host regular webinars and run various campaigns to increase awareness and education for Australians living with immunodeficiency.

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Care and Support

We offer a range support initiatives including member meet-ups, group chats and peer mentoring for Australians living with immunodeficiency and their carers.

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Driving Change - Advocacy

We advocate and support research into a range of issues significant to patients with primary and secondary immunodeficiencies.

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Creating Awareness and Education

We offer a range of resources and run campaigns to increase awareness and education for Australians living with immunodeficiency.

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Building Community: Care and Support

We offer emotional, social and practical support to Australians living with immunodeficiency through engagement events, support groups and peer-mentoring.

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Driving Change: Advocacy

We advocate and support research into a range of issues significant for patients with primary and secondary immunodeficiencies.

Find out more

About IDFA

IDFA is a national not-for-profit and leading peak body offering education, advocacy and awareness for Australians living with primary or secondary immunodeficiencies. In conjunction with our community-focussed model of care.

IDFA assists in achieving improved patient outcomes and quality of life. With the support of our medical advisory panel and through national and international relationships IDFA is a respected organisation within the medical and patient community.

Member Stories

Caitlin’s Story

Despite not having a history of frequently being ill or requiring hospitalisations, Caitlin was grateful that her doctor took her concerns seriously and pursued the diagnosis.

Arlo’s Story

Arlo’s health journey began in 2019 when he was diagnosed with Schimke Immuno-Osseous Dysplasia (SIOD), a rare multisystem disorder inherited in an autosomal recessive pattern. Although faced with challenges, eight-year-old Arlo embodies joy, determination, and the spirit of adventure. This is his story.

Christopher’s Story

In the heart of Adelaide, ten-year-old Christopher brings warmth and kindness to everyone he meets, his energy and compassion leaving a lasting impact. This is his story.