by idfa | Oct 17, 2023 | News
International Plasma Awareness Week is an annual initiative aimed at raising global awareness about source plasma collection, recognising the invaluable contributions of donors, and enhancing understanding of plasma protein therapies and rare diseases. Every year, it...
by idfa | May 26, 2023 | Story
At three months old, Jack was hospitalised in Orange with a respiratory infection and was back there aged just seven months with pneumonia. Genetic testing at nine months of age provided Jack and his family with an insight into his recurring illness, when he was...
by idfa | Dec 1, 2022 | News
It was fantastic to see some of our members at our QLD Member Reunion at the Rydges Hotel on the 19th of November. At the event, guests heard from two IDFA members about their experience living with an immunodeficiency, as well as IDFA Board and Medical Advisory Panel...
by idfa | Sep 27, 2022 | Story
Sean is Gloria’s firstborn – a special young man with the New Year’s Day birthday of 1st of the 1st in 2011 (born at 11.42am). Sean proudly tells everyone that his birthday has all the Ones! Sean was a beautiful baby, with a personable nature and a ready smile....
by idfa | Aug 19, 2022 | News
Carolyn Dews, IDFA CEO, Takes on Ride500 Challenge To celebrate the once in a lifetime UCI 2022 Road World Championships taking place in Wollongong, Cancer Council NSW is bringing together Wollongong Bosses through their Ride500 campaign to go head-to-head in a...
by idfa | Jul 19, 2022 | News
Young Adult Members Conference: 23 July 2022 Itinerary Saturday 23 July, 9am to 3pm 9am-9:05am: Welcome. Acknowledgement of Country. 9.05am-9:15am: Introductions. Presenter: Carolyn Dews, IDFA CEO. 9.15am-9:45am: 3 x Young Adult Members share their health journey...
by idfa | May 20, 2022 | Story
Oli is 14 years old and absolutely soccer mad. He plays for a club as well as an academy and has recently been to the National Cup in Sydney where his team came third in the Under 14’s category. Oli has lightning pace backed up by a massive goal scoring ability. Last...
by idfa | Apr 22, 2022 | Uncategorised
Member Stories: Making a difference to PI Click above to explore our member...
by idfa | Apr 5, 2022 | News
2022 World PI Week (22-29th April) What is World PI Week? World PI Week offers an opportunity to inform and educate health policy-makers, schools and families, and the general public about primary immunodeficiencies (PI) to drive the earliest possible diagnosis and...
by idfa | Feb 11, 2022 | News
2022 Rare Disease Day What is Rare Disease Day? Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Since its...
