by idfa | Jul 9, 2026 | Story
When Jonno was diagnosed with Common Variable Immunodeficiency (CVID) in early 2023, it came as a complete surprise. Aside from the occasional cold that seemed to linger longer than expected, he considered himself healthy and had never even heard of immunodeficiency....
by idfa | May 14, 2026 | Story
For Holly, life has always involved balancing big dreams with the realities of living with a primary immunodeficiency. Diagnosed with hypogammaglobulinemia in her early twenties, she has spent nearly half her life navigating treatments, hospital stays, and learning...
by idfa | May 14, 2026 | Story
Thomas has spent most of his life being unwell. From just three months old, he was constantly battling chest infections, with much of his childhood shaped by sickness, hospital visits, and unanswered questions. Growing up in New Zealand, his family struggled to find...
by idfa | May 1, 2026 | News
This year, IDFA’s Rare Disease Day campaign brought together schools, families, advocates, and communities across the country to help raise awareness of primary immunodeficiencies (PI) and the experiences of those living with rare diseases. At the heart of the...
by idfa | Jan 27, 2026 | Story
When baby Eva was just four months old, her mum Alice and dad Dan noticed something wasn’t right. What began as simple formula feeding quickly turned into months of unexplained symptoms. By five to six months, Eva was experiencing persistent diarrhoea, yet every stool...
by idfa | Sep 18, 2025 | Story
For Alison, caring is not just something she does—it’s who she is. As a mother to two teenage daughters living with Common Variable Immunodeficiency (CVID), her life is stitched together with illness, resilience, and a deep love for her husband and daughters. Her...
by idfa | Sep 4, 2025 | Story
In the quiet spaces between nursing shifts, therapy appointments, and medical paperwork, one mother quietly carries the weight of caring for her young son, who lives with hypogammaglobulinemia—a primary immunodeficiency that has shaped much of his early life and hers....
by idfa | Jun 3, 2025 | Story
Michelle has built a life filled with creativity, resilience, and a steadfast commitment to raising awareness about her health condition, Common Variable Immunodeficiency (CVID). Now 64 years old, she was diagnosed at 57. Michelle’s journey has not been easy,...
by idfa | Jun 3, 2025 | Story
For most of his life, Archie Dowell lived with a series of unexplained health challenges that took him across the world in search of answers. Today, Archie lives in Sydney with his partner Keya and their children Barry and Indahli, embracing each day with newfound...
by idfa | Jun 3, 2025 | Story
Chris experienced a profound shift in her life in September 2022 when she was diagnosed with Common Variable Immunodeficiency (CVID) along with B lymphocytopenia and intermittent neutropenia. This diagnosis came after years of dealing with vague health issues and...
