Share Your Story

Every member has an important story to share

Each person brings a unique history and outlook to their diagnosis journey, and there is so much value in sharing your lived experience and insights with others.

By sharing your story, you’ll be empowering others living with a similar diagnosis and/or lifestyle and helping IDFA continue to highlight the variety, diversity, and vibrancy of our IDFA community.

This is a self-paced, four-part workshop, where members are sent an email each week (for four weeks), prompting them to answer a short set of questions. At the end of the workshop, participants are presented with their stories.

Share Your Story Here

This is a self-paced, four-part workshop, where members are sent an email each week (for four weeks), prompting them to answer a short set of questions. At the end of the workshop, participants are presented with their stories.

Take a look at some of our latest member stories below

Nic’s Story

Nic’s Story

Over the years, Nic has had many doctors turn her away for being ‘too complex a case’ however her now doctor is the perfect person to help her! This is her story…

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Michelle’s Story

Michelle’s Story

In 2020, when Michelle celebrated her 56th birthday she was finally diagnosed with Hypogammaglobulinemia after years of unknown causes to her being unwell. This is her story…

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Vanessa’s Story

Vanessa’s Story

On her 23rd Birthday, Vanessa was diagnosed with Common Variable Immunodeficiency (CVID). This is her story…

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