by idfa | Feb 11, 2022 | News
2022 Rare Disease Day What is Rare Disease Day? Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Since its...
by idfa | Feb 3, 2022 | News
Managing your child’s return to the classroom This information has been provided by IDFA member, teacher and mum of two, Bianca. You can read more about Bianca’s story here. Bianca is one of our friendly family support group moderators. If you are...
by idfa | Feb 1, 2022 | News
Managing your child’s fatigue and over-stimulation when they return to school This information has been provided by IDFA member, teacher and mum of two, Bianca, to offer you and your child some tips on managing fatigue and overstimulation as they return to...
by idfa | Feb 1, 2022 | News
Back to School Tips for Parents and Carers of PID/SID Children This information has been provided by an IDFA member to offer you and your child some tips and tools for a smooth transition back to school this year. This IDFA member has significant experience in...
by idfa | Jan 24, 2022 | News
Help IDFA Advocate for Access to Rapid Antigen Tests for Immunodeficient Patients and Carers We understand that many of you are feeling anxious, stressed, frustrated and/or concerned given the current COVID-19 developments and the risk that this exposes to your...
by idfa | Nov 23, 2021 | News
New Group Chat for Young Adult Members We’re excited to announce that we’ll soon be launching a new Group Chat via Zoom especially for our young adult members (aged 15-30 years)! This will be a weekly event, with the first one kicking off on Wed 1 December. This...
by idfa | Nov 22, 2021 | News
8-year old Tyson Gavan Aims to Raise $5,000 for IDFA This month, 8-year-old Tyson Gavan is aiming to raise $5,000 for the IDFA by calling on people to sponsor him to cut off his hair this Giving Tuesday (30th November, 2021). Having received a bone marrow transplant...
by idfa | Nov 11, 2021 | News
In Memory of Geoffrey McAlary IDFA would like to send their condolences to the family and friends of Geoffrey McAlary and thank them for their donations that have been made in memory of Geoffrey. Geoffrey lived a full life, all the while fighting a long battle with...
by idfa | Oct 22, 2021 | News
Perth’s Luke Kavenagh Runs for the Immune Deficiencies Foundation Australia Perth local, 24-year-old Luke Kavenagh ran for a cause at the Perth Marathon over the weekend, raising close to $2,000 for the Immune Deficiencies Foundation Australia (IDFA). Despite living...
by idfa | Oct 22, 2021 | News
‘A Day in the Life’ Young Adult Members Engagement Campaign We’re excited to have recently launched a campaign designed to engage our young adult members aged 15-30 years. The campaign is designed to ensure that our younger members living with immunodeficiency...
