Raife’s Story

Raife’s Story

Raife is their unexpected little blessing. Due to knowing that they had a 1 in 4 chance of having another baby with SCID, they had decided years ago not to have another child and had come to peace with that decision. However, nature had other plans, and they...
Nic’s Story

Nic’s Story

Located 600km south of mainland Australia and surrounded by several oceans is the picturesque island of Tasmania. It’s here, in Launceston where Nic and her family call home. Two days a week, you’ll find Nic at work, where she passionately works with students, to help...
Rare Voices Australia Parliamentary Event in Canberra

Rare Voices Australia Parliamentary Event in Canberra

On Thursday February 29th, Carolyn Dews, IDFA CEO had the privilege of attending the Rare Voices Australia parliamentary event in Canberra. The theme, ‘Progress Beyond Policy,’ resonated deeply as we witnessed the launch of Australia’s inaugural...

Melbourne Member Meet-Up

In early December, we were delighted to host our Melbourne member meet, uniting numerous individuals for connection and learning. ‘Blossoming Together’ was our focus as it symbolises our community’s growth, resilience and vibrancy. Just as the...
Michelle’s Story

Michelle’s Story

In her late twenties, Michelle began experiencing persistent discomfort, prompting her to delve into the root causes of fatigue, mental fogginess, and an inability to perform at her optimum level. Originally from Queensland, Michelle made the decision to relocate to...
Vanessa’s Story

Vanessa’s Story

Before her diagnosis, Vanessa was a relatively healthy child, however in her teens and early 20s she began getting sick more frequently and taking weeks or months to recover. Doctors kept prescribing antibiotics which did help to a degree but would prescribe them for...
Dale’s Story

Dale’s Story

Up until 2020, Dale was an active, fit, and healthy Australian (originating from England), who has a distinguished academic career – known globally for his work in disaster risk management, government policy, emergency services as well as being the Chairman of the...
Ben’s Story

Ben’s Story

Ben was introduced to the immunodeficiency community more than 15 years ago, when he met his wife, Lisa. In their youth, they spent time partying and enjoying life, relatively oblivious to the implication immunodeficiency can have on a person’s life. Although Lisa...
Antoni’s Story

Antoni’s Story

On the 20th of October 2021, Ladawan gave birth to her son, Antoni at St. George Hospital. Although Antoni arrived into the world a little earlier than expected, all went well. A few days after his arrival, a Newborn Bloodspot Screening test was done, and he was sent...