News and Media


We communicate regularly with our members via newsletters. The latest issues are posted below.

June 24 Newsletter

May 24 Newsletter

April 24 Newsletter

Latest IDFA Updates

Media Releases

Nationwide Implementation of SCID Newborn Screening Ends Postcode Lottery

The role of the collective voice was pertinent for the implementation of SCID testing Australia wide, with Rare Voices Australia bringing patients and organisations together to advocate for the inclusion into newborn screening.


It is time to shine a light on ‘Hidden Disabilities’

In recent times, there has been increased recognition around ‘hidden disabilities,’ and patient organisations Australian Primary Immunodeficiency Patient Support (AusPIPS Inc.) and Immune Deficiencies Foundation Australia (IDFA) are joining the conversation.


Unite and wear your colours for Rare Disease Day 2024

Olivia Murdoch emphasises the importance in raising awareness for all rare diseases. “We know that education about these kinds of illnesses will provide earlier diagnosis and treatment for people, with the aim to avoid potentially life-threatening situations, which we had to endure.”


Upcoming Events

IDFA hosts a range of different events, meetings and webinars for our members.

Upcoming events are listed on our events page. 

Important Dates

Rare Disease Day - Last day of February

Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’ lives.

World PI Week - 22-29 April

Observed every year from April 22 to April 29 World PI Week is a global initiative that aims to increase awareness and improve the early diagnosis and treatment of primary immunodeficiencies (PI).


International Plasma Awareness Week - First week of October

Held annually, International Plasma Awareness Week raises global awareness about source plasma collection, recognises the valued contributions of donors, and increases understanding about plasma protein therapies and rare diseases.



Coronavirus (COVID-19) Updates

The global pandemic is an ever-changing situation so it’s important you keep up to date with the current status in your state or territory. For those living with an immunodeficiency please seek guidance specific to your illness from your medical team particularly if you suffer from respiratory issues.

COVID-19 – immunodeficiency and vaccines

With the implementation of Australia’s COVID-19 vaccine national rollout strategy, we have had a range of questions from our members about what this will mean for people with primary or secondary immunodeficiency.

We have compiled a list of resources for you which provide information specific to the immunodeficiency community, the vaccines available in Australia and the national rollout strategy.