Publications on primary and secondary immunodeficiencies

IDFA has a large library of publications about immunodeficiency freely available for you to download. Most publications have been created for primary immunodeficiency patients however much of the information is also suitable for those living with secondary immunodeficiency. If you are an IDFA member you can request hard copies for yourself, your family, school and any of your treating clinicians.

IDFA Publications

IDFA Lifestyle Series: Fatigue and PID

IDFA Lifestyle Series: Nutrition and the Immune System

IDFA Secondary Immune Deficiencies Booklet

Immunodeficiencies and applying for the NDIS

Immune Deficiency Foundation (America) Publications

IDF Patient & Family Handbook 6th Edition (e-resource only)

IDF Patient & Family Handbook 5th Edition 

International Patient Organisation for Primary Immunodeficiencies (IPOPI) Publications

Diagnosis of Primary Immunodeficiencies

How are Primary Immunodeficiencies Classified?

Management After Diagnosis

Treatments for PID’s: a Guide for Patients and their Families

Immunoglobulin Therapy – One Size Doesn’t Fit All

When to give Immunoglobulin Replacement Therapy

Plasma-Derived Therapies

SCIg Infusions: A Practical Guide for Patients

Guide for Internal Medicine Specialists

Hematopoietic Stem Cell Transplantation

A Practical Guide for General Practitioners

Primary Immunodeficiencies and Gastrointestinal disorders

Primary Immunodeficiencies and Respiratory Disorders

Autoimmunity and Autoinflammation

Primary Immunodeficiencies in Adults

Vaccines and Primary Immunodeficiencies

Primary Immunodeficiencies and Allergies

Primary Immunodeficiencies and Infections

Primary Immunodeficiencies and Psychological Management

Stay Healthy! A Guide for Patients and their Families

A Guide for Schools

Moving from Child to Adult Care

Guide for Pulmonologists

(e-resource only)

Guide for Gastrointestinal Specialists

(e-resource only)

Primary Immunodeficiencies and the skin

(e-resource only)

Primary Immunodeficiencies and Cancer

(e-resource only)

Hyper-IgE Syndrome

(e-resource only)


(e-resource only)

Guide for Hepatologists

(e-resource only)

Genetic Diagnosis of PID’s

(e-resource only)

APDS – Activated PI3K Delta Syndrome

(e-resource only)

Value of SCID Newborn Screening

CGD – Chronic Granulomatous Disease

CVID – Common Variable Immunodeficiency

Common Variable Immunodeficiency Management

Targeted Therapies for PID

XLA – X-Linked Agammaglobulinemia

SCID – Severe Combined Immunodeficiency

WAS – Wiskott-Aldrich Syndrome

Hyper IgM Syndrome

Essentials for PID Diagnosis

Other Publications

Our Immune System by S. LeBien

10 Warning Signs Poster

AusPIPS: About Immunoglobulin Brochure 

IDFA Overview