Useful Links

More information about immunodeficiencies, related organisations, support and resources.

For additional information go to our FAQ’s page or look at our publications page.

Rare Disease Organisations


National Organisation for Rare Disorders (overseas organisation)

Rare Voices Australia

Genetics Information Resources

Garvan Research Institute of Medical Research

Genetic Alliance Australia

Genetic Support Network Victoria

NSW Government Health – Centre for Genetics Education

Mental Health Support Information

Beyond Blue

Bipolar Australia

COPE (Centre of Perinatal Excellence) Australia

emPRAC - Digital Mental Health


Lifeline Australia

Mens Line Australia


Phoenix Australia


Disability and Aged Care Support Information

Disability Australia Hub

Disability Employment Services

Disability Gateway

Disability Support Guide

My Aged Care

Carers – Information and Support

Carer Gateway

My Time - Disability Carers

Raising Children Network

Parent Works

Children’s Health Information

AusEE Inc (Tube Aware)

AUSPEN (Australia Parental and Enteral Nutrition) Resources

Health Direct - General Child Health Information

SCID Angels for Life Foundation

Starlight Foundation

Consumer Health and Privacy

Australian Government – Office of the Australian Information Commissioner

Consumer Complaints Commission

Consumer Health Forum

Healthy Lifestyle and Wellbeing Information

Kids Health

Healthy Kids Australia

Raising Children

Falls Prevention

Australia and New Zealand Falls Prevention Society

Physical Activity

Mens Health

Healthy Male

Mens Line Australia


Nutrition Australia

Eat for Health

Department of Health and Aged Care

Dietitian's Association of Australia

Sexual Health and Sexually Transmitted Infections (STIs)

Better Health - STIs

Health Direct - Sexual Health

Family Planning NSW - Resources


Sleep Foundation of Australia

Womens Health

Jean Hailes Foundation