Since first displaying symptoms, Dale has been on a journey to determine the root cause of his recurring episodes of illness, which range from 2-10 days and come almost every two weeks. The immunology team at St Vincent’s Hospital are continuing to work to confirm the exact kind of immunodeficiency Dale suffers from. As many of our members are already aware, this can be a lengthy process and take years to find out.
Recently, Dale was found (via a PET scan) to have evidence of some Vasculitis (a relatively rare disease that causes inflammation of blood vessels) and was treated for this. Unfortunately, the treatment for this has caused other health implications including life threatening blood clots in his lungs.
Today he is managing his symptoms with a range of medications and has regular blood tests and visits to his immunologist. Although he is grateful for some respite through medication, there are still challenges in everyday tasks. However, he tries hard to look for the joy in everyday and celebrates the small wins, for example, the ability to shower unassisted.
When he can, Dale spends as much time as possible outside gardening. He has found purpose in creating life as he is unable to currently work due to recurring sickness. Gardening has been a way for Dale to support his emotional and mental wellbeing. He often gives the plants away as presents, or sells them at markets, giving away the proceeds to charity.
Although a new member to IDFA, Dale has found solace in knowing that others are in similar situations to himself and is appreciative of finding this community to lean upon.