Oli’s Story

Oli’s Story

Oli Oli is 14 years old and absolutely soccer mad. He plays for a club as well as an academy and has recently been to the National Cup in Sydney where his team came third in the Under 14’s category. Oli has lightning pace backed up by a massive goal scoring...
Bianca’s family diagnosis

Bianca’s family diagnosis

Bianca’s family diagnosis Nathan and I have two inquisitive, adventurous and mischievous children, our son aged 10 and daughter aged 6. Oliver was a miserable baby, suffering from reflux and food allergies and often was unable to sleep for longer than an hour...
Jude and IRAK-4 deficiency

Jude and IRAK-4 deficiency

Jude and IRAK-4 deficiency Our son Jude was born in March in 2018. He was well until ten months of age. At this time, Jude was hospitalised for an infection. We believed at the time he was just unlucky. What followed was a blur of serious illnesses, an unhappy baby,...
Laurie & Beccy

Laurie & Beccy

Laurie & Beccy Caring for two “zebras” Who are we? We have 2 daughters – gorgeous,  fun, interesting, smart and each deficient in a range of antibodies. They both have a primary immune deficiency, meaning they and us have lived the life of sick...
Tyson

Tyson

Tyson Our son Tyson was born in April 2013 in Sydney and was reasonably well for the first 6 months of his life. It was around October 2013 when he began to have a series of unexplained infections and fevers that would go away with IV antibiotics and return soon after...