Rare Disease Day – 28 February 2021 Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’...
Update to Member Services due to COVID-19 Due to the impact of COVID-19 we have already started to change our Business Model so that we are able to provide our education, awareness and advocacy campaigns online, continuing the development of innovative programs for...
Laurie & Beccy Caring for two “zebras” Who are we? We have 2 daughters – gorgeous, fun, interesting, smart and each deficient in a range of antibodies. They both have a primary immune deficiency, meaning they and us have lived the life of sick...
Sharon Hello, my name is Sharon and I am happy to say that I am 65 years old. My husband Michael and I have 3 adult children and our family is enriched by three amazing and gorgeous grandchildren (although I’m very biased!) I am so in love with them and treasure every...
Kayleigh My name is Kayleigh and I am 27 years old I’m originally from the UK and I have been in Australia nearly 6 years and am now a permanent resident. I met my husband while I was traveling Australia and decided to stay, and I am mummy to a very energetic nearly...
