IDFA is a national not-for-profit and leading peak body offering education, advocacy and awareness for Australians living with primary or secondary immunodeficiencies. In conjunction with our community-focussed model of care IDFA assists in achieving improved patient outcomes and quality of life. With the support of our medical advisory panel and through national and international relationships IDFA is a respected organisation within the medical and patient community.
Jack was hospitalised with a respiratory infection and then with pneumonia at seven months. Subsequent Genetic testing provided Jack’s parents with some insight when he was diagnosed with Wiscott-Aldridge Syndrome. Here is Jack’’s story…
Gloria is the mother of 11 year old Sean. Sean is an amazing young man who underwent a stem cell transplant for X-SCID in 2012. This is her story…
As a sporty teenager, Oli has struggled to accept his diagnosis and doesn’t want his health to affect his sport. Oli has shared his story in the hope that there may be other young people out there who feel the same. This is his story…
2022 World PI Week (22-29th April)
What is World PI Week? World PI Week offers an opportunity to inform and educate health policy-makers, schools and families, and the general public about primary...
2022 Rare Disease Day
What is Rare Disease Day? Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to...
Managing your child’s return to the classroom
This information has been provided by IDFA member, teacher and mum of two, Bianca. You can read more about Bianca's story here. Bianca is one of our friendly family support...
You can make a difference in the lives of Australians living with a rare disease.
Become a member
Join the IDFA community to access a range of resources, events and connect with patients and carers.
We’re developing a range of services and events for IDFA members. Keep watching our Events page for updates.
The IDFA has been a great way to connect with other families with similar experiences, which has allowed access to a wealth of knowledge. The IDFA annual conference was also an amazing opportunity to learn and provided so much information. The IDFA has offered so much support, including Carers' events and resource material, which are great to give to kids' schools. Their Facebook groups have been a great place to ask questions and advice. So pleased to have found the IDFA, and would 100% recommend it to anyone seeking advice, support, information or resources.
When I got sick in 2011 I felt so alone, I had never heard of CVID. Then it was recommended to contact IDFA. I found people all over Australia that were the same as me. It has been a godsend.
My name is Row and I am from NSW. After years of recurrent infections saw an amazing new immunologist who diagnosed me with a rare primary immunodeficiency. I found IDFA via Google and have found the support and resources from IDFA amazing. IDFA very quickly sent me a pack of great resources and also some resources for my GP. The Facebook group has been great, have learnt so much and receiving a phone call to check in made me feel supported and welcomed.