Welcome to IDFA

Living with a primary or secondary immunodeficiency?
Do you find yourself looking for extra support and acceptance?
Let’s face it, living with an immunodeficiency impacts on all aspects of your health and lifestyle.

Awareness and Education

We offer a range of informative resources, host regular webinars and run various campaigns to increase awareness and education for Australians living with immunodeficiency.


Care and Support

We offer a range support initiatives including member meet-ups, group chats and peer mentoring for Australians living with immunodeficency and their carers.


Driving Change - Advocacy

We advocate and support research into a range of issues significant to patients with primary and secondary immunodeficiencies.


Creating Awareness and Education

We offer a range of resources and run campaigns to increase awareness and education for Australians living with immunodeficiency.

Building Community: Care and Support

We offer emotional, social and practical support to Australians living with immunodeficency through engagment events, support groups and peer-mentoring.

Driving Change: Advocacy

We advocate and support research into a range of issues significant for patients with primary and secondary immunodeficiencies.

About IDFA

IDFA is a national not-for-profit and leading peak body offering education, advocacy and awareness for Australians living with primary or secondary immunodeficiencies. In conjunction with our community-focussed model of care IDFA assists in achieving improved patient outcomes and quality of life. With the support of our medical advisory panel and through national and international relationships IDFA is a respected organisation within the medical and patient community.

Member Stories

Jack’s Story

Jack was hospitalised with a respiratory infection and then with pneumonia at seven months. Subsequent Genetic testing provided Jack’s parents with some insight when he was diagnosed with Wiscott-Aldridge Syndrome. Here is Jack’’s story…

Gloria’s Story

Gloria is the mother of 11 year old Sean. Sean is an amazing young man who underwent a stem cell transplant for X-SCID in 2012. This is her story…

Oli’s Story

As a sporty teenager, Oli has struggled to accept his diagnosis and doesn’t want his health to affect his sport. Oli has shared his story in the hope that there may be other young people out there who feel the same. This is his story…

Latest Updates

2022 Rare Disease Day

What is Rare Disease Day? Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to...

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Get Involved


You can make a difference in the lives of Australians living with a rare disease.

Become a member

Join the IDFA community to access a range of resources, events and connect with patients and carers.

Latest Events

We’re developing a range of services and events for IDFA members. Keep watching our Events page for updates.


The IDFA has been a great way to connect with other families with similar experiences, which has allowed access to a wealth of knowledge. The IDFA annual conference was also an amazing opportunity to learn and provided so much information. The IDFA has offered so much support, including Carers' events and resource material, which are great to give to kids' schools. Their Facebook groups have been a great place to ask questions and advice. So pleased to have found the IDFA, and would 100% recommend it to anyone seeking advice, support, information or resources.

Javeria, NSW

When I got sick in 2011 I felt so alone, I had never heard of CVID. Then it was recommended to contact IDFA. I found people all over Australia that were the same as me. It has been a godsend.

Beth, VIC

My name is Row and I am from NSW. After years of recurrent infections saw an amazing new immunologist who diagnosed me with a rare primary immunodeficiency. I found IDFA via Google and have found the support and resources from IDFA amazing. IDFA very quickly sent me a pack of great resources and also some resources for my GP. The Facebook group has been great, have learnt so much and receiving a phone call to check in made me feel supported and welcomed.

Row, NSW