Become a Member

Are you looking for a supportive community of people who understand life with an immunodeficiency?

Whether you are the patient, a caregiver, or a family member of someone living with an immunodeficiency you can become a member of IDFA.

Our motto is “I Don’t Feel Alone”

No matter where you live in Australia, we connect you with a community of other people living with immunodeficiency and empower you with our extra support, educational resources and opportunities to be further involved.

IDFA membership is FREE for Australian residents living with a confirmed diagnosis of a primary or secondary immunodeficiency, their direct caregivers, family members and healthcare professionals.

Become an IDFA member to access our:

Online Resource Library
Private Facebook Community Group
Immunodeficiency Insights Webinar Series
Peer Mentoring Program Circle of Support
Medical Advisory Committee for guidance on medical questions
IDFA Community Events (in-person and online)
IDFA National Conference and State Meetups
Advocacy opportunities via the monthly newsletter

Adult Membership Form

IDFA membership offers adults living with immunodeficiencies access to trusted information, meaningful community connection, and strong advocacy support—helping them better understand their condition and navigate everyday life with confidence.

Start Application

Child and Carer Membership Form

IDFA supports children with immunodeficiencies and their families through clear, age-appropriate education, warm community care, and dedicated advocacy—ensuring they feel informed, encouraged, and supported at every stage of their journey.

Start Application

Carer Membership Form

IDFA provides carers with practical education, community connection, and tailored advocacy tools to strengthen their ability to support and advocate for loved ones living with immunodeficiencies.

Start Application

Healthcare Professional Membership Form

IDFA equips healthcare professionals with up-to-date education, opportunities for community engagement, and valuable advocacy resources to enhance the care they provide to people living with immunodeficiencies.

Start Application

Member Testimonials

IDFA has been a great source of information on my immunodeficiency and available treatments. The support group is a vital lifeline for me to connect with others who understand how it feels to manage my condition and provide helpful advice. During the pandemic I was very isolated and IDFA had provided much needed guidance on treatments available. The work is invaluable to all people dealing with immunodeficiencies.

Pearl, Adult Member Testimonial

When my baby was diagnosed with a rare an immunodeficiency, the immunology team put us in contact with IDFA. We received a welcome pack with great resources and even a check-in phone call! Through the Facebook group I was then able to connect directly with other carers who’d helped their little ones through bone marrow transplants just like we had. Isolating from crowds and public places is… isolating! But support from IDFA in all its forms helped me feel less alone.

Alice, Carer Member Testimonial

IDFA makes me feel like I’m not the only kid like me. Mum and Dad told me there are other kids who have immune problems too, and they have to take medicine and get treatments like I do. I like when we go to the meet-ups because I get to see and play with kids.

Jude, Child Member Testimonial

Being an IDFA Member has been invaluable in my role as a Carer for a child with an immune deficiency. It has connected me with a supportive community, equipped me with practical self-advocacy tools, and provided the education I needed to better navigate our PID journey and feel less alone.

Louise, Carer Member Testimonial

There is great value in being a health care professional member of a patient support organisation. Not only is there the potential to directly contribute to improved health outcomes for our patients and their families, but the better understanding of the impact of disease and their treatments from a patient and family perspective enhances our clinical interactions and practice to the benefit of our patients and community.

Dr Melanie Wong, Healthcare Professional Testimonial

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