News and Media
e-Newsletters
We communicate regularly with our members via newsletters. The latest issues are posted below.
March 24 Newsletter
February 24 Newsletter
January 24 Newsletter
Latest IDFA Updates
Rare Voices Australia Parliamentary Event in Canberra
On Thursday February 29th, Carolyn Dews, IDFA CEO had the privilege of attending the Rare Voices Australia parliamentary event in Canberra. The theme, 'Progress Beyond Policy,'...
Melbourne Member Meet-Up
In early December, we were delighted to host our Melbourne member meet, uniting numerous individuals for connection and learning. 'Blossoming Together' was our focus as it...
Celebrating International Plasma Awareness Week!
International Plasma Awareness Week is an annual initiative aimed at raising global awareness about source plasma collection, recognising the invaluable contributions of donors,...
Media Releases
Unite and wear your colours for Rare Disease Day 2024
Olivia Murdoch emphasises the importance in raising awareness for all rare diseases. “We know that education about these kinds of illnesses will provide earlier diagnosis and treatment for people, with the aim to avoid potentially life-threatening situations, which we had to endure.”
READ MORE
Local Not-For-Profit Hosts 'Plasma Party'
Receiving a diagnosis of an immunodeficiency has an impact across all aspects of your day-to-day life. Our Patient Membership offers resources, events, tools and community to support you through your journey.
READ MORE
Upcoming Events
Important Dates
Rare Disease Day - Last day of February
Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’ lives.
FIND OUT MORE
World PI Week - 22-29 April
Observed every year from April 22 to April 29 World PI Week is a global initiative that aims to increase awareness and improve the early diagnosis and treatment of primary immunodeficiencies (PI).
FIND OUT MORE
International Plasma Awareness Week - First week of October
Held annually, International Plasma Awareness Week raises global awareness about source plasma collection, recognises the valued contributions of donors, and increases understanding about plasma protein therapies and rare diseases.
FIND OUT MORE
Coronavirus (COVID-19) Updates
The global pandemic is an ever-changing situation so it’s important you keep up to date with the current status in your state or territory. For those living with an immunodeficiency please seek guidance specific to your illness from your medical team particularly if you suffer from respiratory issues.
COVID-19 – immunodeficiency and vaccines
With the implementation of Australia’s COVID-19 vaccine national rollout strategy, we have had a range of questions from our members about what this will mean for people with primary or secondary immunodeficiency.
We have compiled a list of resources for you which provide information specific to the immunodeficiency community, the vaccines available in Australia and the national rollout strategy.
COVID-19 Resources
ASCIA COVID-19 Resources
- ASCIA – COVID-19 vaccine FAQ’s for those living with allergy, immunodeficiency and autoimmunity
- ASCIA – Guide: Immunodeficiency, Autoimmunity and COVID-19 Vaccination
- ASCIA – Allergy, Immunodeficiency and Autoimmunity COVID-19 Vaccination Position Statement
- ASCIA Position Statement – COVID-19 Prophylaxis in People with Immune Deficiencies
- ASCIA – Evusheld for COVID-19 prophylaxis
Australia Government COVID-19 Resources
- Australian Government – Department of Health – updates for COVID-19 vaccines
- Australian Government – Department of Health – Australia’s vaccine national rollout strategy
- Australian Government – Department of Health – Information for people with disability about COVID-19 vaccines
- Australian Government – Department of Health – COVID-19 health alert information