Ben’s Story

Ben’s Story

Ben was introduced to the immunodeficiency community more than 15 years ago, when he met his wife, Lisa. In their youth, they spent time partying and enjoying life, relatively oblivious to the implication immunodeficiency can have on a person’s life. Although Lisa...
Antoni’s Story

Antoni’s Story

On the 20th of October 2021, Ladawan gave birth to her son, Antoni at St. George Hospital. Although Antoni arrived into the world a little earlier than expected, all went well. A few days after his arrival, a Newborn Bloodspot Screening test was done, and he was sent...
Isabelle’s Story

Isabelle’s Story

Isabelle was 4 months old when she stopped being able to breath properly and started turning purple around her lips and in her hands and feet. Fortunately, she was already waiting in the Emergency Department of the Children’s Hospital, where doctors were able to...
Jasper’s Story

Jasper’s Story

I gave birth to a perfect baby boy on the 28th of May, 2016. He was healthy, and chubby and all of the best things a baby can be. He slept well, he ate well and he was in the top 97th percentile for his height and weight at his first two appointments.  When he was...
Kai’s Story

Kai’s Story

In February 2022, Sumali gave birth in Blacktown Hospital, NSW to her first child – Kai (meaning warrior). It was a relatively straight forward birth for the young couple who were so excited for the arrival of their little boy. Over the first few days, Sumali and...