Chris experienced a profound shift in her life in September 2022 when she was diagnosed with Common Variable Immunodeficiency (CVID) along with B lymphocytopenia and intermittent neutropenia. This diagnosis came after years of dealing with vague health issues and...
Luke’s life took a significant turn when he was diagnosed with Common Variable Immunodeficiency (CVID) when he was 24 years old. For years, he had struggled with unexplained illnesses, often feeling persistently unwell. It wasn’t until he attempted to...
World Primary Immunodeficiency Week 2025 was a meaningful opportunity to unite our community, elevate awareness, and spotlight the lived experiences of people living with primary immunodeficiencies (PI). Led by IDFA, the campaign connected thousands of Australians to...
At the age of 26, Caitlin faced a turning point in her life when she was diagnosed with both Common Variable Immunodeficiency and Granulomatous Interstitial lung disease (GLILD). For Caitlin, this diagnosis came as a surprise; growing up, she had shown no symptoms...
IDFA’s Rare Disease Day 2025 campaign was a resounding success, raising awareness, fostering connections, and amplifying the voices of those living with primary immunodeficiencies (PI) and rare diseases. Through storytelling, social media engagement, and advocacy, the...
