News and Media
e-Newsletters
We communicate regularly with our members via newsletters. The latest issues are posted below.
Sept 25 Newsletter
Aug 25 Newsletter
July 25 Newsletter
Latest IDFA Updates
SCID Newborn Screening Update
SCID NEWBORN SCREENING UPDATE IDFA have been advocating for SCID newborn screening to be included in routine screening for newborn babies for a number of years. At the moment...
Primary Immune Education (PIE) Program
We are excited to announce the beginning of our Primary Immune Education (PIE) Program. The PIE Program is a series of 12 educational webinars held each Thursday evening from 3 June through to 19 August 2021. The program aims to educate and inform Australians affected by primary immunodeficiency (PI) on topics relevant to diagnosis and lifestyle, addressing PI from a wholistic perspective.
IDFA members collaborate with us for World PI Week 2021
As part of our World PI Week 2021 campaign the team at IDFA collaborated with members who submitted their personal vision to produce a video. Their stories reflected upon the...
Podcasts
Live and Learn
25 Nov 2024
‘Ep.13: Immune Deficiencies Foundation Australia’
Too Peas in a Podcast
13 March 2024
‘Louise talks about her little bumblebee Isabelle’
Media Releases
Australians Urged to Step Up for Invisible Illness During World PI Week
To mark World Primary Immunodeficiency (PI) Week (April 22–29), IDFA launched Stride for Primary Immunodeficiency—a national walking campaign encouraging Australians to take steps in solidarity with those living with this often invisible condition.
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Young Warrior Austin Sparks Awareness for Rare Disease Day
More than two million Australians live with a rare disease, and on February 28, 2025, the Immune Deficiencies Foundation Australia (IDFA) is calling on communities to come together, spread awareness, and have the conversation about rare diseases like immunodeficiencies.
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Local Not-For-Profit Hosts ‘Plasma Party’
In recognition of International Plasma Awareness Week, Immune Deficiencies Foundation Australia (IDFA) is joining forces with Lifeblood Australia to host a ‘Plasma Party’ at the Wollongong donor centre on Tuesday, 1 October.
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Upcoming Events
Important Dates
Rare Disease Day - Last day of February
Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’ lives.
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World PI Week - 22-29 April
Observed every year from April 22 to April 29 World PI Week is a global initiative that aims to increase awareness and improve the early diagnosis and treatment of primary immunodeficiencies (PI).
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International Plasma Awareness Week - First week of October
Held annually, International Plasma Awareness Week raises global awareness about source plasma collection, recognises the valued contributions of donors, and increases understanding about plasma protein therapies and rare diseases.