Latest IDFA Updates
Itinerary Saturday 23 July, 9am to 3pm 9am-9:05am: Welcome. Acknowledgement of Country. 9.05am-9:15am: Introductions. Presenter: Carolyn Dews, IDFA CEO. 9.15am-9:45am: 3 x Young...
What is World PI Week? World PI Week offers an opportunity to inform and educate health policy-makers, schools and families, and the general public about primary...
What is Rare Disease Day? Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to...
Local Not-For-Profit Hosts 'Plasma Party'
Receiving a diagnosis of an immunodeficiency has an impact across all aspects of your day-to-day life. Our Patient Membership offers resources, events, tools and community to support you through your journey.
Rare Disease Day - Last day of February
Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’ lives.
World PI Week - 22-29 April
Observed every year from April 22 to April 29 World PI Week is a global initiative that aims to increase awareness and improve the early diagnosis and treatment of primary immunodeficiencies (PI).
International Plasma Awareness Week - First week of October
Held annually, International Plasma Awareness Week raises global awareness about source plasma collection, recognises the valued contributions of donors, and increases understanding about plasma protein therapies and rare diseases.
Coronavirus (COVID-19) Updates
The global pandemic is an ever-changing situation so it’s important you keep up to date with the current status in your state or territory. For those living with an immunodeficiency please seek guidance specific to your illness from your medical team particularly if you suffer from respiratory issues.
COVID-19 – immunodeficiency and vaccines
With the implementation of Australia’s COVID-19 vaccine national rollout strategy, we have had a range of questions from our members about what this will mean for people with primary or secondary immunodeficiency.
We have compiled a list of resources for you which provide information specific to the immunodeficiency community, the vaccines available in Australia and the national rollout strategy.
ASCIA COVID-19 Resources
- ASCIA – COVID-19 vaccine FAQ’s for those living with allergy, immunodeficiency and autoimmunity
- ASCIA – Guide: Immunodeficiency, Autoimmunity and COVID-19 Vaccination
- ASCIA – Allergy, Immunodeficiency and Autoimmunity COVID-19 Vaccination Position Statement
- ASCIA Position Statement – COVID-19 Prophylaxis in People with Immune Deficiencies
- ASCIA – Evusheld for COVID-19 prophylaxis
Australia Government COVID-19 Resources
- Australian Government – Department of Health – updates for COVID-19 vaccines
- Australian Government – Department of Health – Australia’s vaccine national rollout strategy
- Australian Government – Department of Health – Information for people with disability about COVID-19 vaccines
- Australian Government – Department of Health – COVID-19 health alert information