Luke’s Story

Luke’s Story

Luke’s life took a significant turn when he was diagnosed with Common Variable Immunodeficiency (CVID) when he was 24 years old. For years, he had struggled with unexplained illnesses, often feeling persistently unwell. It wasn’t until he attempted to...
Caitlin’s Story

Caitlin’s Story

At the age of 26, Caitlin faced a turning point in her life when she was diagnosed with both Common Variable Immunodeficiency and Granulomatous Interstitial lung disease (GLILD). For Caitlin, this diagnosis came as a surprise; growing up, she had shown no symptoms...
Rare Disease Day 2025: A Campaign That Made a Difference

Rare Disease Day 2025: A Campaign That Made a Difference

IDFA’s Rare Disease Day 2025 campaign was a resounding success, raising awareness, fostering connections, and amplifying the voices of those living with primary immunodeficiencies (PI) and rare diseases. Through storytelling, social media engagement, and advocacy, the...
Arlo’s Story

Arlo’s Story

In the bustling suburb of Victoria, eight-year-old Arlo embodies joy, determination, and the spirit of adventure. Arlo’s life is filled with exciting activities; he loves rock climbing, camping, and scouting. His mother, Mandy, walks alongside him as they embark on...