by idfa | Mar 26, 2024 | News
On Thursday February 29th, Carolyn Dews, IDFA CEO had the privilege of attending the Rare Voices Australia parliamentary event in Canberra. The theme, ‘Progress Beyond Policy,’ resonated deeply as we witnessed the launch of Australia’s inaugural...
by idfa | Mar 21, 2024 | News
In early December, we were delighted to host our Melbourne member meet, uniting numerous individuals for connection and learning. ‘Blossoming Together’ was our focus as it symbolises our community’s growth, resilience and vibrancy. Just as the...
by idfa | Dec 21, 2023 | Story
In her late twenties, Michelle began experiencing persistent discomfort, prompting her to delve into the root causes of fatigue, mental fogginess, and an inability to perform at her optimum level. Originally from Queensland, Michelle made the decision to relocate to...
by idfa | Nov 16, 2023 | Story
Before her diagnosis, Vanessa was a relatively healthy child, however in her teens and early 20s she began getting sick more frequently and taking weeks or months to recover. Doctors kept prescribing antibiotics which did help to a degree but would prescribe them for...
by idfa | Nov 16, 2023 | Story
Up until 2020, Dale was an active, fit, and healthy Australian (originating from England), who has a distinguished academic career – known globally for his work in disaster risk management, government policy, emergency services as well as being the Chairman of the...
by idfa | Oct 31, 2023 | Story
Ben was introduced to the immunodeficiency community more than 15 years ago, when he met his wife, Lisa. In their youth, they spent time partying and enjoying life, relatively oblivious to the implication immunodeficiency can have on a person’s life. Although Lisa...
by idfa | Oct 24, 2023 | SCID Story
On the 20th of October 2021, Ladawan gave birth to her son, Antoni at St. George Hospital. Although Antoni arrived into the world a little earlier than expected, all went well. A few days after his arrival, a Newborn Bloodspot Screening test was done, and he was sent...
by idfa | Oct 24, 2023 | SCID Story
Isabelle was 4 months old when she stopped being able to breath properly and started turning purple around her lips and in her hands and feet. Fortunately, she was already waiting in the Emergency Department of the Children’s Hospital, where doctors were able to...
by idfa | Oct 24, 2023 | SCID Story
I gave birth to a perfect baby boy on the 28th of May, 2016. He was healthy, and chubby and all of the best things a baby can be. He slept well, he ate well and he was in the top 97th percentile for his height and weight at his first two appointments. When he was...
by idfa | Oct 24, 2023 | SCID Story
In February 2022, Sumali gave birth in Blacktown Hospital, NSW to her first child – Kai (meaning warrior). It was a relatively straight forward birth for the young couple who were so excited for the arrival of their little boy. Over the first few days, Sumali and...
