by idfa | Jun 3, 2025 | Story
Michelle has built a life filled with creativity, resilience, and a steadfast commitment to raising awareness about her health condition, Common Variable Immunodeficiency (CVID). Now 64 years old, she was diagnosed at 57. Michelle’s journey has not been easy,...
by idfa | Jun 3, 2025 | Story
For most of his life, Archie Dowell lived with a series of unexplained health challenges that took him across the world in search of answers. Today, Archie lives in Sydney with his partner Keya and their children Barry and Indahli, embracing each day with newfound...
by idfa | Jun 3, 2025 | Story
Chris experienced a profound shift in her life in September 2022 when she was diagnosed with Common Variable Immunodeficiency (CVID) along with B lymphocytopenia and intermittent neutropenia. This diagnosis came after years of dealing with vague health issues and...
by idfa | Jun 3, 2025 | Story
Luke’s life took a significant turn when he was diagnosed with Common Variable Immunodeficiency (CVID) when he was 24 years old. For years, he had struggled with unexplained illnesses, often feeling persistently unwell. It wasn’t until he attempted to...
by idfa | Jun 3, 2025 | News
World Primary Immunodeficiency Week 2025 was a meaningful opportunity to unite our community, elevate awareness, and spotlight the lived experiences of people living with primary immunodeficiencies (PI). Led by IDFA, the campaign connected thousands of Australians to...
by idfa | May 13, 2025 | Story
At the age of 26, Caitlin faced a turning point in her life when she was diagnosed with both Common Variable Immunodeficiency and Granulomatous Interstitial lung disease (GLILD). For Caitlin, this diagnosis came as a surprise; growing up, she had shown no symptoms...
by idfa | May 6, 2025 | News
IDFA’s Rare Disease Day 2025 campaign was a resounding success, raising awareness, fostering connections, and amplifying the voices of those living with primary immunodeficiencies (PI) and rare diseases. Through storytelling, social media engagement, and advocacy, the...
by idfa | Feb 20, 2025 | Story
In the bustling suburb of Victoria, eight-year-old Arlo embodies joy, determination, and the spirit of adventure. Arlo’s life is filled with exciting activities; he loves rock climbing, camping, and scouting. His mother, Mandy, walks alongside him as they embark on...
by idfa | Feb 20, 2025 | Story
In the heart of Adelaide, ten-year-old Christopher brings warmth and kindness to everyone he meets, his energy and compassion leaving a lasting impact. Known as “Chris” to his family and friends, Christopher exudes a unique charm that captivates those...
by idfa | Feb 20, 2025 | Story
In the vibrant city of Queensland, five-year-old Austin shines as a beacon of joy and resilience. As a child, Austin’s life revolves around adventure, curiosity, and exploring the great outdoors. Known for his love of water, he enjoys being at the beach or in the...