World PI Week
World PI Week
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IDFA is celebrating World PI Week
22nd-29th April 2025
World PI Week is a global campaign which aims to raise awareness and improve diagnosis and treatment of primary immunodeficiencies (PI).
It offers an opportunity to inform and educate health policymakers, schools and families, and the general public about PI to drive the earliest possible diagnosis and optimal treatment.
Since inception in 2011, World PI Week has played a crucial role in raising awareness and understanding of primary immunodeficiency across the globe, and it’s continually gaining traction in multiple countries.
World PI Week is observed every year from the 22nd of April and led by a global network of stakeholders – this steering committee are working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a primary immunodeficiencies.
people worldwide may be living with PI.
%
of PI sufferers are still undiagnosed.
average time before diagnosis (for IDFA members).
Ways to get involved with World PI Week
Everyone, including individuals, families, caregivers, healthcare professionals, researchers, clinicians, policy makers, industry representatives and the general public can participate in raising awareness and taking action for World PI Week.
Find out more about the ways you get can get involved below:
Stride for Primary Immunodeficiency
Take a step toward change! This April, pledge to walk 5km, 10km, or even 50km to raise awareness for primary immunodeficiencies. Rally support from your community and make a real impact by seeking donations along the way. Every step you take and every dollar you raise helps provide vital resources, advocacy, and support for those living with immunodeficiencies.
Join the movement, share your journey, and encourage friends and family to donate to your cause. Together, we can make a difference—one step at a time!
Support Those Walking for Immunodeficiency
Every step taken by our incredible walkers raises awareness for those living with primary immunodeficiencies (PI). By supporting their journey, you’re helping to fund vital resources, advocacy, and community programs that make a real difference.
Donate today and show your support for the PI community—because no one should walk this path alone. Every contribution counts!
Stay in the Know
Stay up-to-date with all the latest news and upcoming activities for our campaign by signing up to our e-newsletter!
Don’t miss out on any major updates or events during World PI Week. Join our community and stay connected!
Attend our World PI Week Webinar - The Impact of Comorbidities on Immunodeficiency
In partnership with AusPIPS Inc.
Join us for this webinar as we explore the impact of comorbidities on immunodeficiency. Learn from experts about the conditions that can coexist with immunodeficiency and gain valuable insights on managing them effectively.
This session is designed for individuals living with immunodeficiencies, as well as their carers and healthcare professionals.
Start a Conversation
Talking about immunodeficiencies can help break down barriers and raise awareness. Start a conversation with your friends, family, colleagues, and interest groups to share important information about these conditions.
By discussing immunodeficiencies, you can help others understand the challenges people face, promote empathy, and encourage support for those living with these conditions. Every conversation is an opportunity to educate and create meaningful change in your community.
Spread the Word
Your voice has the power to make a difference! Spread the word about Primary Immunodeficiencies (PIs) by downloading the IDFA social media kit. This kit is packed with ready-to-share graphics, key facts, and sample posts to help you educate and engage your community.
By sharing these resources on your social media channels, you can help shine a light on the challenges faced by those living with PI.
Every post counts—join us in raising awareness and making an impact today!