Support
Supporting all Australians living with immunodeficiency
Receiving a diagnosis of primary or secondary immunodeficiency has an impact across all aspects of your day-to-day life. Living a life of multiple medical appointments, illnesses and medications is exhausting which is why IDFA offers a variety of ways to support you.
How can IDFA support you?
You’re not alone in this journey. No matter where you live in Australia, we can provide a community and the extra support you’re looking for through our membership program.
Social support – bringing you together with others affected by immunodeficiency
- Connect with the IDFA community in our private Facebook groups
- Connect with the IDFA community in our private Facebook groups
- Patient linking – connect with others who have similar a PID/SID
- Member get-togethers supported by IDFA
Emotional support – giving you opportunities to share your experience with others
- CounsellingCounselling
- Practical advice on living with immunodeficiency
- Peer support programs
Educational support – learn more about primary and secondary immunodeficiency
- Resources (e-resources and hard copy)Resources (e-resources and hard copy)
- Educational programs
- Patient meetings and conferences (in-person and online)
- Webinars
- Advice on accessing NDIS and Centrelink services
- Guidance from our Medical Advisory Committee
Advocacy support – encouraging self-advocacy and advocating for you on key issues
- Through social media you can advocate for yourself by sharing our news, updates and educational graphics.Through social media you can advocate for yourself by sharing our news, updates and educational graphics
- IDFA advocates on your behalf influencing policy makers and government on key issues eg SCID newborn screening
Emotional support – giving you opportunities to share your experience with others
- Community education programsCommunity education programs
- Awareness campaigns throughout the year eg World PI Week, National Blood Donor Week, International Plasma Awareness Week
- Raising awareness in the medical and broader community by attending and speaking at special events encouraging acceptance of immunodeficiencies