As a baby, Tyson’s ongoing infections were beginning to worry his family. After several hospital admissions they insisted on further testing which resulted in the diagnosis of X-linked Chronic Granulomatous Disease, a rare genetic disease. Upon further consultation a bone marrow transplant (BMT) was recommended; Tyson’s younger brother was a suitable match and the family went ahead with procedure. It was a harrowing journey with a successful outcome.
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If you’re an IDFA Member we would love to hear more about your experience with primary or secondary immunodeficiency. By sharing your story you’re empowering others living with a similar diagnosis.
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