As a baby, Tyson’s ongoing infections were beginning to worry his family. After several hospital admissions they insisted on further testing which resulted in the diagnosis of X-linked Chronic Granulomatous Disease, a rare genetic disease. Upon further consultation a bone marrow transplant (BMT) was recommended; Tyson’s younger brother was a suitable match and the family went ahead with procedure. It was a harrowing journey with a successful outcome.
Share your story
If you’re an IDFA Member we would love to hear more about your experience with primary or secondary immunodeficiency. By sharing your story you’re empowering others living with a similar diagnosis.
Not sure where to start? Get in touch with us at: firstname.lastname@example.org