Member Stories

IDFA members share their experience of living with immunodeficiency.

Real People. Real Stories. In their own words.

Alice and Eva’s Story

Alice and Eva’s Story

When baby Eva was just four months old, her mum Alice and dad Dan noticed something wasn’t right. What began as simple formula feeding quickly turned into months of unexplained symptoms. By five to six months, Eva was experiencing persistent diarrhoea, yet every stool sample came back clear. Their GP couldn’t find an answer.

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Alison’s Story

Alison’s Story

For Alison, caring is not just something she does—it’s who she is. As a mother to two teenage daughters living with Common Variable Immunodeficiency (CVID), her life is stitched together with illness, resilience, and a deep love for her husband and daughters.

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Shaya’s Story

Shaya’s Story

As a paediatric intensive care nurse and mother, Shaya balances her career with caring for her young son, who lives with hypogammaglobulinemia and other complex health needs. Daily life is filled with therapies, appointments, and careful health monitoring, alongside the financial strain of ongoing treatments.

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Michelle’s Story

Michelle’s Story

Michelle has built a life filled with creativity, resilience, and a steadfast commitment to raising awareness about her health condition, Common Variable Immunodeficiency (CVID). This is her story…

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Archie’s Story

Archie’s Story

Archie’s health story began when he was just three years old. He was hospitalised with dangerously low platelet levels and diagnosed with Idiopathic Thrombocytopenic Purpura (ITP). This is his story…

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Chris’s Story

Chris’s Story

Chris experienced a profound shift in her life in September 2022 when she was diagnosed with Common Variable Immunodeficiency (CVID) along with B lymphocytopenia and intermittent neutropenia. This is her story…

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