Member Stories

IDFA members share their experience of living with immunodeficiency.

Real People. Real Stories. In their own words.

Michelle’s Story

Michelle’s Story

Michelle has built a life filled with creativity, resilience, and a steadfast commitment to raising awareness about her health condition, Common Variable Immunodeficiency (CVID). This is her story…

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Archie’s Story

Archie’s Story

Archie’s health story began when he was just three years old. He was hospitalised with dangerously low platelet levels and diagnosed with Idiopathic Thrombocytopenic Purpura (ITP). This is his story…

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Chris’s Story

Chris’s Story

Chris experienced a profound shift in her life in September 2022 when she was diagnosed with Common Variable Immunodeficiency (CVID) along with B lymphocytopenia and intermittent neutropenia. This is her story…

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Luke’s Story

Luke’s Story

For Luke, his life is not defined by his diagnosis but rather enriched by it. He views his condition as a single aspect of his identity, one that does not dictate the quality of his life. This is his story…

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Caitlin’s Story

Caitlin’s Story

Despite not having a history of frequently being ill or requiring hospitalisations, Caitlin was grateful that her doctor took her concerns seriously and pursued the diagnosis.

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Arlo’s Story

Arlo’s Story

Arlo’s health journey began in 2019 when he was diagnosed with Schimke Immuno-Osseous Dysplasia (SIOD), a rare multisystem disorder inherited in an autosomal recessive pattern. This is his story.

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