An Understanding of Genetics and Immunodeficiency

Online via Zoom

Our Speaker Rebecca Macintosh is a Genetic Counsellor with the Sydney Children’s Hospital and will be conducting two genetic sessions for the Immune Deficiencies Foundation Australia.

In this first session, Rebecca will provide us with a basic understanding of genetics and how genes are passed down through families. Rebecca will talk through genetic counselling and testing options and why our DNA is just part of our health journey.

The Changing Landscape of Pain Management

Online via Zoom

Persistent pain or chronic pain is on the rise with 80% of people missing out on care. In this session, discussion will be focused on understanding pain, identification of contributing factors and new ways of managing pain within a multimodal approach. It will be an empowering session, providing insights on how to break the vicious cycle of pain, the utilisation of self-care and self-management strategies to lessen the impact of chronic pain in daily life.

Pop Culture Trivia Night for Young Adult Members!

Online via Zoom

Are you an IDFA member aged 15-30?  You're invited to our virtual Pop Culture Trivia Night for Young Adult Members! It's a great chance to meet and connect with other members your age, and if that isn't reason enough there are also some great prizes up for grabs, including: 1st Prize: $250 Visa Gift Card […]

Carers Health and Wellbeing

Online via Zoom

Join us for this special PI Education Webinar in celebration of National Carers Week.

Caring for a family member or friend is often rewarding, but may at times lead carers to feel physically and emotionally overwhelmed.

This session helps carers explore the impacts of caring, identify barriers to self-care, reflect on the importance of looking after their physical and emotional health, explore strategies and develop a self-care plan to address their health and wellbeing needs.

Severe Combined Immunodeficiency (SCID)

Online via Zoom

In this Webinar well-known Immunologist and SCID Advocate, Dr. Melanie Wong will talk about the progress that has been made towards having mandatory SCID testing throughout Australia and how you can help with this important campaign.

COVID-19 Vaccination & Immunodeficiency

Online via Zoom

In this webinar, we will provide you with a range of information about the COVID19 Vaccinations, as well as an understanding of the possible side effects and effectiveness for people living with and/or caring for members with a PI.

A Wholistic Approach

Online via Zoom

We are thrilled to have special guest speaker Dr Brian Broom, from New Zealand, for our final webinar in the Primary Immune Education Program. This will be a very special presentation. Dr Broom is both a Clinical Immunologist and a Psychotherapist and internationally recognised as a leader in WHOLE PERSON healthcare, especially for people with […]

Financial Burden of PI

Online via Zoom

The financial impact on families living with a PI is significant, particularly when there are multiple diagnoses in the one household. In this session we have Martin Derby, a financial counsellor to offer strategies and tips on managing your finances and available support. Register in advance for this webinar here: https://us02web.zoom.us/webinar/register/WN_78OR3VM6SAqaYnnQptKobA PLEASE NOTE: All event […]

Families & Relationships

Online via Zoom

When one or more members of a family live with a rare disease it has an impact on our relationships and family dynamics. In this webinar we address some of the common issues and suggest practical ways to help the whole family communicate better as well as some overall coping strategies. Louise Healy, the Education […]

Nutrition & Healthy Lifestyle

Online via Zoom

Healthy lifestyle is essential for quality of life when living with PI. In this webinar we have Kate Battocchio, a dietitian and exercise physiologist from Diabetes NSW to discuss all things nutrition, the impact of lifestyle factors such as sleep and stress and the role of exercise in healthy living. Register in advance for this […]

Self-Advocacy

Online via Zoom

What is self-advocacy, why is it important and how do you ask for what you need? This webinar addresses these issues and more. We are thrilled to have Debra Brook from Disability Advocacy NSW join us for this presentation. Disability Advocacy NSW is one of the largest advocacy services with NSW coverage. The service provides […]

Mental Health, Stigma & Invisible Illness

Online via Zoom

Did you know people living with chronic medical conditions have a higher risk of depression? However mental health is treatable even when chronic illness is present. In this webinar we have a special guest speaker from Beyond Blue. Jeremy will share his journey of hope, recovery and resilience in the face of a mental health […]