News and Media
e-Newsletters
We communicate regularly with our members via newsletters. The latest issues are posted below.
May 25 Newsletter
April 25 Newsletter
March 25 Newsletter
Latest IDFA Updates
World PI Week 2025: Raising Voices, Building Awareness and Walking Together
World Primary Immunodeficiency Week 2025 was a meaningful opportunity to unite our community, elevate awareness, and spotlight the lived experiences of people living with primary immunodeficiencies (PI).
Rare Disease Day 2025: A Campaign That Made a Difference
IDFA’s Rare Disease Day 2025 campaign was a resounding success, raising awareness, fostering connections, and amplifying the voices of those living with primary...
Christmas Giving 🎁
As the holiday season approaches, we reflect on the joy, hope, and love that connect us all. At IDFA, we are committed to making a meaningful difference for those who need it...
Podcasts
Live and Learn
25 Nov 2024
‘Ep.13: Immune Deficiencies Foundation Australia’
Too Peas in a Podcast
13 March 2024
‘Louise talks about her little bumblebee Isabelle’
Media Releases
Australians Urged to Step Up for Invisible Illness During World PI Week
To mark World Primary Immunodeficiency (PI) Week (April 22–29), IDFA launched Stride for Primary Immunodeficiency—a national walking campaign encouraging Australians to take steps in solidarity with those living with this often invisible condition.
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Young Warrior Austin Sparks Awareness for Rare Disease Day
More than two million Australians live with a rare disease, and on February 28, 2025, the Immune Deficiencies Foundation Australia (IDFA) is calling on communities to come together, spread awareness, and have the conversation about rare diseases like immunodeficiencies.
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Local Not-For-Profit Hosts ‘Plasma Party’
In recognition of International Plasma Awareness Week, Immune Deficiencies Foundation Australia (IDFA) is joining forces with Lifeblood Australia to host a ‘Plasma Party’ at the Wollongong donor centre on Tuesday, 1 October.
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Upcoming Events
Important Dates
Rare Disease Day - Last day of February
Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’ lives.
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World PI Week - 22-29 April
Observed every year from April 22 to April 29 World PI Week is a global initiative that aims to increase awareness and improve the early diagnosis and treatment of primary immunodeficiencies (PI).
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International Plasma Awareness Week - First week of October
Held annually, International Plasma Awareness Week raises global awareness about source plasma collection, recognises the valued contributions of donors, and increases understanding about plasma protein therapies and rare diseases.