Share Your Story

Every member has an important story to share

Each person brings a unique history and outlook to their diagnosis journey, and there is so much value in sharing your lived experience and insights with others.

By sharing your story, you’ll be empowering others living with a similar diagnosis and/or lifestyle and helping IDFA continue to highlight the variety, diversity, and vibrancy of our IDFA community.

Share Your Story Here

This is a self-paced, four-part workshop, where members are sent an email each week (for four weeks), prompting them to answer a short set of questions. At the end of the workshop, participants are presented with their stories.

Take a look at some of our latest member stories below

Michelle’s Story

Michelle’s Story

Michelle has built a life filled with creativity, resilience, and a steadfast commitment to raising awareness about her health condition, Common Variable Immunodeficiency (CVID). This is her story…

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Archie’s Story

Archie’s Story

Archie’s health story began when he was just three years old. He was hospitalised with dangerously low platelet levels and diagnosed with Idiopathic Thrombocytopenic Purpura (ITP). This is his story…

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Chris’s Story

Chris’s Story

Chris experienced a profound shift in her life in September 2022 when she was diagnosed with Common Variable Immunodeficiency (CVID) along with B lymphocytopenia and intermittent neutropenia. This is her story…

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