World PI Week - Share Your Story

World PI Week: Share Your Story

Your data – Your time to diagnosis and your story.

On average, our members experience 9 years before a diagnosis and the journey is often overwhelming with a huge impact on quality of life and wellbeing. So, this year we invite everyone to share their story.

What challenges have you faced trying to find out the cause of your fatigue, ongoing infections, or other health concerns? And What has been the impacts of uncertainty knowing your correct diagnosis?

Fill-in the form below to share your story with us.

World PI Week - Share Your Story

Full Name(Required)

We will only use your first name in sharing your story, full name is just for our reference.

Email Address(Required)

Your email will be used to contact you in regard to your story

State/Territory(Required)

City/Town(Required)

Age(Required)

Please enter a number from 1 to 110.

Age Diagnosed(Required)

Diagnosis (formal name)(Required)

How long did it take you to receive your diagnosis?(Required)

What challenges have you faced trying to find out the cause of your fatigue, ongoing infections, or other health concerns? And What has been the impacts of uncertainty knowing your correct diagnosis?(Required)

Have you had an early diagnosis and how has this impacted your life? And what opportunities has diagnosis given family members for genetic testing? How has genetic testing impacted their life?(Required)

What does World Primary Immunodeficiency (PI) Week mean to you?(Required)

Please provide an image/s to use alongside your story.(Required)

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