World PI Week: Share Your Story

Your data – Your time to diagnosis and your story.

On average, our members experience 9 years before a diagnosis and the journey is often overwhelming with a huge impact on quality of life and wellbeing. So, this year we invite everyone to share their story.

What challenges have you faced trying to find out the cause of your fatigue, ongoing infections, or other health concerns? And What has been the impacts of uncertainty knowing your correct diagnosis?

Fill-in the form below to share your story with us.

World PI Week - Share Your Story

We will only use your first name in sharing your story, full name is just for our reference.
Your email will be used to contact you in regard to your story
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