Volunteer

“I don’t want my struggle to make me a victim. I want my battle to make me someone else’s hero.” This quote resonated with me as it sums up the essence of why I volunteer for IDFA. I spent the first decade after my diagnosis pretty much alone with no information and no idea what to do when I got sick. When I found IDFA, I found understanding and a community. The road to diagnosis is long and to know you are not alone is immensely comforting.” – Pearl

“It is important to support those who are making a difference in people’s lives. Our researchers need support in lots of different ways. Most people can’t make large financial donations, but we can help in other ways such as through patient stories and advocacy. Contacting members of Parliament, local members, and local media can highlight immunodeficiencies and the work of IDFA. Attending local community events and talking to people about these conditions all help. From giving your time you receive more back.” – Jenny

“There is great value in being a health care professional member of a patient support organisation. Not only is there the potential to directly contribute to improved health outcomes for our patients and their families, but the better understanding of the impact of disease and their treatments from a patient and family perspective enhances our clinical interactions and practice to the benefit of our patients and community.” – Melanie