Member Stories

IDFA members share their experience of living with immunodeficiency.

Real People. Real Stories. In their own words.

Michelle’s Story

In 2020, when Michelle celebrated her 56th birthday she was finally diagnosed with Hypogammaglobulinemia after years of unknown causes to her being unwell. This is her story…

Vanessa’s Story

On her 23rd Birthday, Vanessa was diagnosed with Common Variable Immunodeficiency (CVID). This is her story…

Dale’s Story

Dale has recently become familiar with the IDFA community when displaying symptoms of an immune deficiency.

Ben’s Story

Ben was introduced to the immunodeficiency community more than 15 years ago, when he met his wife, Lisa. This is where the journey of a carer began for Ben…

Jack was hospitalised with a respiratory infection and then with pneumonia at seven months. Subsequent Genetic testing provided Jack’s parents with some insight when he was diagnosed with Wiscott-Aldridge Syndrome. Here is Jack’s story…