When one or more members of a family live with a rare disease it has an impact on our relationships and family dynamics. In this webinar we address some of the common issues and suggest practical ways to help the whole family communicate better as well as some overall coping strategies.

Louise Healy, the Education and Advocacy Officer at Rare Voices Australia will be joining us for this webinar. She has post-graduate qualifications in psychology and over 10 years of experience in rare disease support and advocacy and has been at the helm of many successful advocacy campaigns in the rare disease sector. Louise has a personal connection to the rare disease community when her first child was born with a rare metabolic disorder.

Register in advance for this webinar here: https://us02web.zoom.us/webinar/register/WN_pHVOt8XgTkaN69-Tzeq9Gg

PLEASE NOTE: All event times are in AEST. If you live in a different time zone please check the time for your region.