Register now to express your interest in the Circle of Support Pilot Program

We are pleased to announce that our pilot peer support program – Circle of Support is now open for expressions of interest.

The program is available to all IDFA members with a recent diagnosis, as well as members experiencing isolation or other challenges managing their immunodeficiency.

While we have always offered peer support to members as needed, Circle of Support will now offer one-to-one peer support to any of our members who wish to receive the extra support.

Participants of the program will be able to chat with a peer mentor about issues related to their immunodeficiency or that of a family member. Regular contact can then be arranged as needed to work towards personal goals and actions to improve quality of life and support self-management.

If you’d like to express interest in this program, please fill in the form below and IDFA staff will be in touch with you as soon as possible.

Circle of Support - Expressions of Interest

MM slash DD slash YYYY
Areas for Peer Mentoring Support(Required)
Please select 2-3 priority areas where you wish to receive support.
This field is for validation purposes and should be left unchanged.

Why particpate in Circle of Support?

Connect with a mentor who can get to know your personal journey and help you work though issues impacting your Immunodeficiency.

Learn strategies from your mentor to empower you to achieve your goals for treatment, lifestyle or health.

Receive free, personalised, holistic support specifically designed to improve your quality-of-life with an immunodeficiency.

Frequently Asked Questions

What is Peer Mentoring?

Peer Mentoring is free support for IDFA Members to improve their self-management of treatment and wellbeing while living with an Immunodeficiency.

The aim of Peer Mentoring is to support Members to improve their quality of life.

Peer Mentors aim to:

  • Connect with you to understand your personal journey and challenges
  • Empower you to identify and achieve personal goals in the previously listed areas and
  • Support you to develop skills to self-manage and self -advocate to maximise your wellbeing and quality of life.

Peer Mentors provide social and emotional support and Member directed health coaching and mentoring to build confidence to help you maximise your wellbeing living with your Immune Deficiency.

What experience do Peer Mentors have?

IDFA Peer Mentors are Members with lived experience managing their own Immune Deficiency or caring for another with an Immunodeficiency.

They have completed training to provide IDFA Circle of Support peer mentoring. This includes mental health and wellbeing, treatment options and working with healthcare providers, self-advocacy, managing fatigue and pain, managing the cost of treatment, managing work or study or other life transition impacting on your management,  and supporting holistic self-management for immune health such as nutrition, sleep and physical activity.

Can I choose my Peer Mentor?

You will be matched to an IDFA Peer Mentor ideally in your state and territory. If you are a Carer, ideally you will be matched with a Carer.

You will also receive a photo, description and contact details for your matched Peer Mentor so you can make contact to find out more about the program.

Do I have to participate for 12 weeks?

You can choose to receive peer mentoring support for a period of up to 12 weeks or less to focus on key areas, or choose to extend that period if needed, and also to re-enrol to focus on other self -management areas with a new personal Circle of Support Plan.

The program is directed by Members. You determine the program period, how often you contact the Peer Mentor and your personal goals and actions in your personal Circle of Support Plan.

What if I get sick or need to travel during the program?

The program is flexible and Peer Mentors understand the day to day challenges of living with an Immunodeficiency.

If travelling or managing study, work or caring commitments you can make contact arrangements to include in your personal Circle of Support plan.

Are my mentoring sessions private?

Yes. All contact with your Peer Mentor remains private and confidential. In the case that a Peer Mentor is concerned for your mental wellbeing they will refer you to relevant support services and your GP, advise IDFA and follow up with you to ensure you have been able to access additional support.

All Peer Mentors are IDFA Volunteers and abide by IDFA Privacy and Confidentiality Policies and Procedures.

What areas can I receive support?

Your Circle of Support Plan can include a wide variety of personal goals and actions. These may include mental health and wellbeing, treatment options and working with healthcare providers, self-advocacy, managing fatigue and pain, managing the cost of treatment, managing work or study or other life transition impacting on your management,  and supporting holistic self-management for immune health such as nutrition, sleep and physical activity.

You can also discuss any other areas impacting on your wellbeing with Your Peer Mentor to include in your Circle of Support plan.

Your Peer Mentor will work with you to help you prioritise personal areas for support and develop a practical and realistic Circle of Support Plan for your Mentoring period to suit your personal circumstances.

How often can I contact my Peer Mentor?

All contact with your Peer Mentor is directed by you and you will receive contact details for your Peer Mentor when your registeration in the Program is confirmed.

You and your Peer Mentor will also discuss specific contact arrangements which will be included in your Circle of Support plan.