SCID NEWBORN SCREENING UPDATE IDFA have been advocating for SCID newborn screening to be included in routine screening for newborn babies for a number of years. At the moment there is a Pilot Program running in NSW through until 2022, which provides this screening and...
Primary Immune Education (PIE) Program We are excited to announce the beginning of our Primary Immune Education (PIE) Program. The PIE Program is a series of 12 educational webinars held each Thursday evening (AEST) from 3 June through to 19 August 2021. The program...
IDFA members collaborate with us for World PI Week 2021 As part of our World PI Week 2021 campaign the team at IDFA collaborated with members who submitted their personal vision to produce a video. Their stories reflected upon the journey of diagnosis and quality of...
World PI Week: 22-29 April 2021 World PI Week is a global awareness campaign held annually between 22-29 April, bringing together stakeholders worldwide to create a ‘global movement’. The primary aims of World PI Week are to inform and educate policy makers,...
Rare Disease Day – 28 February 2021 Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’...
Update to Member Services due to COVID-19 Due to the impact of COVID-19 we have already started to change our Business Model so that we are able to provide our education, awareness and advocacy campaigns online, continuing the development of innovative programs for...
