This year is the 10th Anniversary of World PI Week, celebrating ten years of success in raising awareness of primary immunodeficiency across the world. To recognise this milestone World PI Week will run for 10 weeks, from 22nd April to 1st July.
You can help us celebrate World PI Week
Do you want your voice to be heard? During this time of COVID-19 your voice and your story is more important than ever. This is your opportunity to be an advocate for primary immunodeficiencies.
IDFA is asking members to share your PI success stories which we can upload to social media and our website. Together we can continue to raise awareness of primary immunodeficiencies.
How can I help?
OPTION 1 – Create a video
Name your PI – let’s highlight types of PI and what it’s like living with PI
Create a short video (Less than 60 seconds). The video should include:
- Name of your PI
- Treatment you rely on to remain healthy
- How your life is better because of diagnosis and treatment
Get creative, just keep it under 60 seconds. If you’re stuck for words here is a sample script.
“Hi, my name is John. I live with a primary immunodeficiency called X-linked Agammaglobulinemia also known as XLA. It affects my immune system which means I am susceptible to infections. There is no cure for XLA so I rely on regular plasma infusions to keep me healthy. Thanks to the generosity of plasma donors I can continue to work, visit my grandchildren and travel.”
OPTION 2 – Write your story
Share your PI success story (with a photo)
Your written story should be 2-3 short paragraphs and include:
- Your name
- Name of your PID
- Age at diagnosis
- How long did your diagnosis take?
- Please provide a brief summary of your PI journey. This could be about diagnosis, treatment or something significant to your story. eg “My name’s John. I have a primary immunodeficiency called CVID. I lived with recurrent infections for 20 years until I was finally diagnosed. My treatment includes regular plasma infusions. Because of these infusions I can do things I enjoy like spending time with my family and travelling.”
- How has your life improved since receiving a diagnosis
Strike a Y! Have some fun and strike a pose
Enter the World PI Week photo competition. Take a photo of yourself striking a Y pose. Your photo should feature the colours blue and green (World PI Week colours).
Share your photo on social media using #PIctureAwareness and tag @theidfa (for Instagram) or @ImmuneDeficiencyFoundationAustralia (for Facebook)
Note: This competition is held by World PI Week not IDFA.
Sign the global call to action
Show your support by signing the global call to action asking governments to improve understanding, diagnosis and treatment.
Sign the global call to action here: http://www.worldpiweek.org/
Thank you for your support.