The Immune Deficiency Foundation of Australia held it’s 2016 National Conference at Darling Harbour on 8-10 July. 122 Patients, carers, family members and stakeholders attended. The 3 day conference featured international guest speaker Dr Nizar Mahlaoui from the Necker Institute Paris. Dr Mahlaoui spoke about X- Linked Agammaglobulinaemia, Chronic Granulomatous Disease and also Granulomatous Disease in Common Variable Immune Deficiency.
There were 23 Sessions & several interactive workshops about Antibody deficiencies, Advances in diagnosis and Treatments, Fatigue, Autoimmunity, Genetics, and Practical guides for patients & carers.
Speakers also featured prominent Australian Immunologists and Researchers including Dr Melanie Wong, Dr David Gillis, Professor Matthew Cook, Professor John Ziegler, Dr Vanessa Bryant, Dr Charlotte Slade ; guest speakers Anastasia Wilson, Clinical Nurse Educator Canberra Hospital, Dr Marline Squance (Autoimmune Resource and Research Centre), Michael Stone (National Blood Authority); Tanielle Stackman (young adult patient), Richard Price (Board Chair), Christine Jeffery, Chloe Appleton and Emma Joseph.
The Conference also featured the launch of IDFA’s Primary Immune Deficiency Awareness Pin – THANK YOU GRIFOLS! – and our advocacy campaign to have Newborn Screening for Severe Combined Immune Deficiency or SCID (the ‘bubble boy’ disease) added to the Guthrie screening test done at birth.
There was Karaoke, face painting, a photo booth and games on Friday Fun night and Fireworks at the conference dinner! It was our best conference to date !
IDFA thanks our sponsors – Grifols, CSL, Shire, Trend, Department of Social Services, AtPrint, and our donors for making this conference possible. We really appreciate the opportunity to further educate and support our members through our National Conference!
Primary Immune deficiencies are a group of 330 diagnosed genetic disorders affecting 1:100,000 individuals. IDFA supports patients and families affected by primary immune deficiencies. For more information www.idfa.org.au