National Conference 8-10 July 2016 Media Release

The Immune Deficiencies Foundation Australia is pleased to announce the 2016 National Conference “You, Me and PID”.

This 3 day conference will be open to patients, carers and family members of IDFA. Healthcare professionals and industry are also welcome to attend the conference.

Dr Nizar Mahlaoui from the Imagine Institute Paris will be the guest speaker.

Other guest speakers will include prominent Australian Immunologists including IDFA’s medical advisory committee; Dr Melanie Wong and Dr David Gillis.

Topics covered will include: antibody deficiencies, CGD & other phagocyte disorders, bone marrow transplantation and gene therapy, XLA & ARA, advances in diagnosis and treatments, SCID newborn screening, PIDs, allergies & respiratory disorders, tips and tricks, autoimmunity and immunodeficiency, fatigue, psychological needs of patients and carers and several patient workshops.

Christine Jeffery, Executive Officer of the Immune Deficiencies Foundation Australia (IDFA) comments: “National conferences are crucial in a country as vast as Australia. They bring the primary immune deficiency community together and facilitate education, support, advocacy and friendship.”

 Often known as the “bubble boy disease”, Primary Immune Deficiencies (PIDs) are inherited, rare and chronic diseases caused by defects in the genes that control the immune system, so people with PID are born missing some or all of the parts of the immune system. PIDs can be mild, severe & in some cases fatal.

Treatments for primary immune deficiencies include Immunoglobulin (Ig) replacement therapy, Intravenous iG (IVIg), Subcutaneous iG (SCIg), Antibiotics, Steroids, Gamma interferon injections, Hematopoietic Stem Cell transplantation (HSCT) i.e. BMT & Gene therapy.

Prognosis: There is no cure for the majority of PIDs. PIDs can be mild, severe and in some cases fatal. Early diagnosis and correct treatment of PID can:

  • Reduce the number and severity of infections
  • Reduce the impact of on major organs
  • Help many children and adults with PID have a better quality of lifeRaising awareness: IDFA is the peak patient body for Primary Immune Deficiencies in Australia. Membership is free to those affected by PID. Join online at www.idfa.org.au
  • Services: IDFA provides education and emotional support for people with PID and their families. IDFA links the Australian PID community through social media, Conferences and events.
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