This page has information relevant to children, teens and young adults.

Let’s be honest, being a young person you have enough on your plate already, there’s school, studies, homework, hormones, parents, friends, sports, having to be responsible, social commitments, parties, HSC, Tafe, finding a job, girlfriends, boyfriends, bestfriends, money, to name just a few. Throw a PID in the mix and it can all seem to much to bare! We are here to help you!

IDFA can help by: providing resources, educating you and those around you about PID (booklets and brochures, speaking at schools),  through social and emotional support (Skype, phone calls, hospital visits and catch ups), young person linking (through Facebook YAMS and Livewire) and advocacy (attending Youth Health Forums and Youth Expos).

To start with, this is a great resource that all parents and adolescents should get there hands on: Adolescents Living with PID from the IDF Patient and Family Handbook, Australasian Ed. It also has a transition checklist at the end for ages 12-14, 15-17 and 18+.

For more information, read on!


IDFA currently has 4 different ways of connecting with other young people who have PID.  Young people (12-20) can become a member and join the IDFA PID Group. IDFA has just started back on so join up, sit back, and watch it grow! is a safe online community where young people can connect, play games, participate in competitions and other fun activities. You can also be anonymous on



2.IDFA YAMS (Young Adult Members) Facebook Group YAMS Tims Version– This group is for ages 13-27, and is safe space for young adults to talk about PID, treatment, school, music and ask questions. This group is monitored by IDFA staff.


3.IDFA Facebook Group (adults) – Young adults 18+ can join this group as well!




4.INSTAGRAM – IDFA now has an Instagram account. Follow us here! or tag us in your PID related photos #theidfa




Are you at school and your teachers have no idea what PID is, you’re friends ‘don’t get it’ and you are tired of having to explain your situation over and over again? Give them a pamphlet! IDFA has PID brochures, booklets and guides that can help to educate those around you (even the educators!). The resources below are free for IDFA members.

Order your free booklets



The National Disability Coordination Officer (NDCO) program have excellent resources for parents and teenagers.

The National Disability Coordination Officer (NDCO) program works to:

– Improve transitions for people with a disability from their school or community into post-school education, training and subsequent employment
– Increase participation by people with a disability in higher education, vocational education and training and employment
– Establish better links between schools, universities, TAFEs, training providers and disability services providers so that they can work together to provide the best possible assistance for people with a disability.

NDCO work with many groups of people to help us reach these goals. They can help individuals with a disability or chronic medical condition, their families, education and training organisations and professionals, employment services, employers and the community. Their activities include providing information and transition planning assistance, referral and coordination, resource development and training, and awareness raising and promotion.

Don’t hesitate to contact your local NDCO at any time to discuss your information needs or learn more about how they can help.

NDCO have resources for:

  • Students, parents and job seekers
  • employers
  • educators  and trainers

NDCO Resources

NDCO  Resources include:

What is Disability? – A useful resource which outlines the broad definition of disability.
EduApps – Information on free inclusive technology Applications

 NDCO Resources for Students, Parents and Job-seekers include:

Get Ready Workbook – A workbook to help young people to be well prepared for their life after school.
Get Ready Guide for Parents – Tips for successful transition planning
TAFE Step by Step – A guide on transition into TAFE NSW for students with a disability.
Support at TAFE, Uni or Work- Do you get support or exam provisions at school and wonder how you will get them at Uni or at TAFE? Or how you will get adjustments at work? This information sheet can help.
Introduction to Disability Employment Services – Information of DES’s and how to contact them.
For prospective university students with disabilities – Would you benefit from support or exam provisions at uni?

 NDCO booklets include

Get Ready Workbook – A workbook to help young people to be well prepared for their life after school.


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