Resources & Advocacy

Position statements

Advocacy letter templates for patients to Government

Tell your story

NDIS and Immune Deficiency

Resources

Brochures and Booklets about PID click to order

Mental Health Resources

World PI Week Resources

What are PIDs? IDFA publication about PIDs. PDF format, 251 KB.

Organs Affected By PID – IDFA publication. PDF format, 306 KB.

APP

Try IPOPI’s App PID genius – it can be downloaded from Apple stores or Google Play 

IDFA Products

PID Awareness Pin $5 – Tax deductibleOrder here

Hoodies, polos, TShirts, banner pens & wristbands – IDFA Products – order form

 Travelling with Primary Immunodeficiency

  1. If you are travelling into or out of Australia and taking immunoglobulin (plasma derived products are regulated as presciption medicines), check travelling with medicines and medical devices on the Therapeutic Goods Association (TGA) website (watch the video).
  2. Check the medicine is allowed in the country you are travelling to. Do this by contacting their consulate or embassy.
  3. Some medicines that are legally available in Australia are not allowed in other countries
  4. Some medicines are legally allowed in other countries but need a permit
  5. Some medicines need customs clearance – check with customs in each country stop over prior to flying
  6. Your medication may be illegal at your destination (you may need to ask your doctor about alternatives)
  7. Restrictions also apply to complementary medicines
  8. Carry a letter from your doctor
  9. Keep all medication in original packaging
  10. Check with your immunologist for arrangements for appointments and infusions in other countries well before leaving Australia or departing your country

Travelling with SCIg – ASCIA form

Australians needing IVIg overseas

Please consult with your immunologist and refer to the National Blood Authority website well before you travel.

References:

Advocacy

Support newborn screening for Severe Combined Immune Deficiency (SCID)

IDFA Newsletters

Newsletters

Allied Health

Allied healthcare

Research

Research studies, Clinical trials, Journals and Papers

Membership

Join here

Patient recommendations

Effect of yoga therapy on lung functions in respiratory disorder subjects

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