My name is Tanielle. I am 12 years old. I live in the Hunter Valley.I was diagnosed with Pimary Immune Deficiency when I was 18 months old.
When I first started treatment I attended Westmead Childrens Hospital every 4 weeks until I needed to have treatment every 3 weeks. I then transferred to John Hunter Childrens Hospital.
In 2010 I started Subcut twice a week at home. My parents help me do this. It keeps my trough levels more stable.
My wish would be:
- for people to understand what my condition is
- to be able to attend school with all my friends
- and to spend time with children who are like me.
Karen (Tanielle’s mum)
The worst feeling we as parents remember was when we first found out Tanielle’s diagnosis. We had many questions.. Was there a support group in Australia to help us? How many more people have the condition? I can remember crying for days and having no one to talk to about it. Not having many doctors who were aware of PIDs was another major factor that complicated things.
I don’t want other parents and families to go through what we went through.