Nick’s Story “ I’m 28 years old and was born with X linked Hyper IgM, it is a Primary Immune Deficiency. What that means is that I have low white blood cells, I get topped up every month at the Austin Hospital in Melbourne via IV. It is mostly painless and takes about 4hours.
My cute little nephew Brodie is a 2 year old with Hyper IgM, he is also my hero!
We have an additional family member recently diagnosed as well, he is under 6 months old.
Funding never seems to find it’s way into the Immunology Department so I created this event -It’s a BLOODY LONG WAY !- in hope to make things a little better for the next generation”
BLW is a new bike riding event created help raise awareness, support and research projects for Primary Immune Deficiency.
The name symbolises that we have come a long way, the ride is a long way & we still have a bloody long way to go. This is the beginning of an annual event.
Personal donations are being collected on the day and leading up to the event.
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Or contact the event co-ordinator for BLW Nick Tesch [email protected] 0421191469