Member Stories

IDFA has members from babies to seniors with a variety of Primary Immune Deficiencies. Here our some of our stories:

Kayleigh’s Story

Tyson’s Story

If you are a member and want to have your story published, tell us your story.

Our members featured in the media

Kini’s story

Kini has SCID (Severe Combined Immune Deficiency). One of IDFA’s goals is to add SCID to the newborn screening list, as it is fatal unless diagnosed and treated quickly after birth.

Annette’s story

IDFA members featuring in YouTube Clips




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