Welcome to IDFA

IDFA MEMBERSThe Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies (PID).

An immune deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency.

A Primary Immune Deficiency is a disorder where the immune response is reduced or absent. PIDs are caused by defects in the genes that control the immune system, so people with PID are born missing some or all of the parts of the immune system.

Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for PID patients and their families.

IT’S WORLD PI WEEK !

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22-29 APRIL 2016

TELL YOUR STORY! We are creating an IDFA Member Storybook to be published on our website. Tell your story

SPREAD THE WORD ABOUT SCID! Support newborn screening for Severe Combined Immune Deficiency: Let’s stop Australian infant deaths from the “bubble boy” disease. Find out more or sign the form and/or donate to research.

Upcoming events

“You, Me & PID” 2016 IDFA National Conference

NSW Fundraising Dinner Dance

Become a member of IDFA please fill in a membership form.

Make a donation to IDFA please donate here

Resources

12966368_10153918058810399_1631149902_nThe IDF patient and family handbook – Australasian edition is now available. This publication contains over 250 pages of PID information. IDFA thanks CSL Behring for the grant to publish this resource. The average cost of postage is $15. Please consider a donation to IDFA if you are ordering this book. Order here.

IPOPI Resource booklets

 

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Recent updates - IDFA “You, Me & PID” 2016 National Conference

Make your booking now!

DATES: 8-10th July 2016

WHERE: Novotel Hotel, 100 Murray Street, Darling Harbour Sydney

PROGRAM: Features international guest speaker Dr Nizar Mahlaoui from the Imagine Institute France speaking about X-linked Agammaglobulinaemia (XLA) and Chronic Granulomatous Disease (CGD) and prominent Australian immunologists discussing a range of primary immune deficiency topics.

More information and to book

Posted on April 18th, 2016 by Christine in category: Uncategorized | No Comments »

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