Welcome to IDFA
An immune deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency.
A Primary Immune Deficiency is a disorder where the immune response is reduced or absent. PIDs are caused by defects in the genes that control the immune system, so people with PID are born missing some or all of the parts of the immune system.
Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for PID patients and their families.
SUPPORT NEWBORN SCREENING FOR SCID!
We have been contacted by this beautiful family to share their story of loss and sadness because of Severe Combined Immune Deficiency. By sharing this real life story we hope to raise more awareness and understanding around why we are trying to support and initiate Newborn Screening tests for SCID in Australia. Please feel free to share this on your Facebook page to help others understand what we are trying to achieve. Thank you.
Brittany Noble, 19 August at 12:47 · Severe Combined Immunodeficiency Disease (SCID) is a life-threatening condition which is present from birth. If undetected or unsuccessfully treated, SCID is fatal in 100% of cases, usually before a baby’s first birthday. I wasn’t aware of this condition until the loss of my beautiful nephew Harrison in 2010. Harrison’s mother, my sister Bianca Noble has bravely shared his story: Read Harrison’s story.
Blackmore’s Sydney Running Festival 18th September 2016 please support Chloe and our volunteers participating in this event . Our target was $1000. We have reached $2,400! Go team IDFA!!!
IDFA Awareness Pin The IDFA Awareness Pin is now available for purchase. Cost is $10 and is tax deductible. Order here.
Become a member of IDFA please fill in a membership form.
Make a donation to IDFA please donate here
RESOURCES & PUBLICATIONS
The IDF patient and family handbook – Australasian edition is now available. This publication contains over 250 pages of PID information. IDFA thanks CSL Behring for the grant to publish this resource. The average cost of postage is $15. Please consider a donation to IDFA if you are ordering this book. Order here.
WORLD PI WEEK 22-29 APRIL
TELL YOUR STORY! We are creating an IDFA Member Storybook to be published on our website. Tell your story