Welcome to IDFA
The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies -genetic in origin- and Secondary Immune Deficiencies -caused by transplantation, disease (e.g. cancer) or treatment (e.g. chemotherapy).
An Immune Deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency. It is defined by a loss of antibodies or failure of antibody function. The decrease in antibodies causes the immune response to be deficient or absent, resulting in increased susceptibility to infection.
View our info video
Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for patients and their families. Become a member of IDFA
IDFA Music Video “I Don’t Feel Alone”
We are excited to present the IDFA Music Video, “I Don’t Feel Alone” made by our YAMS (young adult members) at the IDFA YAM JAM Conference 2018. The words are written by the YAMS and it features Imogen Abba, Tokana Hennequin, Christopher Bowd and Ben Johnson on vocals, YAMs and staff on chorus and the YAM JAM dancers and scenes from the conference. We hope you enjoy it (click on picture below for link).
Blood Donor “thankyou” cards
Immune Deficiency Information postcards
We have published a new info postcard and new booklets – Secondary Immune Deficiency, Allergies, Infections, Psychological Support and IDFA Strategic Plans. Order here.
The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources
APSID Report 2018 Chongqing – Asia Pacific Society for Immunodeficiencies 2018 Congress, Chongquing China
PPTA Report June 2018 – Plasma Proteins Therapeutic Association, Washington DC
PPTA Video interview topic summary June 2018– this is a summary of my interview at the Plasma Proteins Therapeutic Association, Washington DC
SAVE THE DATE… IDFA National Conference 2019
IDFA National Conference 2019, 13-14 April 2019, Novotel Brisbane. Watch this space for more information!
SUPPORT NEWBORN SCREENING FOR SCID!
Support newborn screening for Severe Combined Immune Deficiency (SCID): Let’s stop Australian infant deaths from the “bubble boy” disease. View the IDFA SCID Newborn Screening Position Statement, find out more or sign the form and/or donate to research.
Brittany Noble, 19 August at 12:47 · SCID is a life-threatening condition which is present from birth. If undetected or unsuccessfully treated, SCID is fatal in 100% of cases, usually before a baby’s first birthday. I wasn’t aware of this condition until the loss of my beautiful nephew Harrison in 2010. Harrison’s mother, my sister Bianca Noble has bravely shared his story: Read Harrison’s story.
Tell us your story! We are always looking for new member stories to publish.
PI AWARENESS PIN
Purchase a Primary Immune Deficiency Awareness PIN . Cost is $10 and is tax deductible. Can you sell a box for us? IDFA thanks Grifols for the grant to enable us to design this unique PID symbol.
Read our latest newsletter: IDFA 2018 Newsletter.1
IDFA is a Registered Charity.
International Entertainment raise funds on IDFA’s behalf running: Circus Quirkus, Razzamatazz and World of Magic shows in NSW, VIC, QLD, ACT and TAS. More information here.
Recent updates - World PI Week is coming 22-29 April 2017
Can you help raise awareness of Primary Immune Deficiencies by distributing posters to your GP or hospital infusion unit?
Can you raise money on World PI Day April 29 by Selling the PI Awareness Pin (tax deductible) or collecting donations?
Can you tell your story for any media enquiries we receive on World PI Week?