Welcome to IDFA

IDFA MEMBERS

The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies -genetic in origin- and Secondary Immune Deficiencies -caused by transplantation, disease (e.g. cancer) or treatment (e.g. chemotherapy).

An Immune Deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency. It is defined by a loss of antibodies or failure of antibody function. The decrease in antibodies causes the immune response to be deficient or absent, resulting in increased susceptibility to infection.

Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for patients and their families.

 

SYDNEY patient meeting: #ID#andme           

DATE: Saturday 21 OCTOBER  2017

TIME: 10.15am – 3.30pm

PLACE: Garvan Institute, 384 Victoria St, Darlinghurst

PROGRAM: #ID#andme program

RSVP: ASAP for catering (numbers attending and any dietary requirements) to [email protected]

IPIC2017

The International Primary Immunodeficiencies Congress will be held in Dubai
Date: 8-10 November 2017
Venue: Crowne Plaza Hotel – Dubai Festival City, UAE

The congress programme is geared towards clinicians, nurses and patients. It features an array of world renowned expert physicians and leading stakeholders from the PID community who will share their experience and provide invaluable perspectives on major clinical considerations: – Early detection for optimal care; – Transplant advances; – PID clinical priorities by world region – Novel treatments; – PID care and ethical issues… among many others important topics! More information.

IDFA Videos

View all 4 videos on the  World PI Week page

IMMUNOGLOBULIN NEWS: INTRAGAM10 

INTRAGAMP changes to INTRAGAM10. From March, IntragamP will be replaced by Intragam10. Read More

SUPPORT NEWBORN SCREENING FOR SCID! 

Harrison

Harrison

Support newborn screening for Severe Combined Immune Deficiency (SCID): Let’s stop Australian infant deaths from the “bubble boy” disease. View the IDFA SCID Newborn Screening Position Statement, find out more or sign the form and/or donate to research.

Brittany Noble,  19 August at 12:47 · SCID is a life-threatening condition which is present from birth. If undetected or unsuccessfully treated, SCID is fatal in 100% of cases, usually before a baby’s first birthday. I wasn’t aware of this condition until the loss of my beautiful nephew Harrison in 2010. Harrison’s mother, my sister Bianca Noble has bravely shared his story: Read Harrison’s story.

Tell us your story! We are always looking for new member stories to publish.

IDFA Pin

IDFA Pin

PI AWARENESS PIN

Purchase a Primary Immune Deficiency Awareness PIN . Cost is $10 and is tax deductible. Can you sell a box for us? IDFA thanks Grifols for the grant to enable us to design this unique PID symbol.

RESOURCES

The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources

Read our latest newsletter: IDFA 2016 Xmas Newsletter

Become a member of IDFA

DONATE

 

Make a donation to IDFA

IDFA is a Registered Charity.

Find us on the ACNC Charity Register Summary and the ASIC Company Summary IDFA

SPONSORS

CSL Behring

CSL Behring

Grifols

Grifols

Shire Logo_Blue

Shire Logo_Blue

INTERNATIONAL  ENTERTAINMENT

International Entertainment

 

International Entertainment raise funds on IDFA’s behalf running: Circus Quirkus,  Razzamatazz  and World of Magic shows in NSW, VIC, QLD, ACT and TAS. More information here.

 

 

    

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Recent updates - World PI Week is coming 22-29 April 2017

Can you help raise awareness of Primary Immune Deficiencies by distributing posters to your GP or hospital infusion unit?

Can you raise money on World PI Day April 29 by Selling the PI Awareness Pin (tax deductible) or collecting donations?

Can you tell your story for any media enquiries we receive on World PI Week?

Posted on February 16th, 2017 by Christine in category: Uncategorized | No Comments »

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