Welcome to IDFA
** SPECIAL ANNOUNCEMENT: IDFA is delighted to announce that it is now extending it’s support and advocacy activities to include Secondary Antibody Deficiencies (Immunodeficiencies thought to be due to other diseases or treatments) as well as Primary Immunodeficiencies. This will initially be open to community members and other patients requiring immunoglobulin replacement therapy. As we continue to grow and with the help of our members and supporters, we are looking forward to being able to offer our services to a larger community.** More Information about Secondary Antibody Deficiencies.
The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies (PID) and Secondary Antibody Deficiencies .
An Immune Deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency. A Primary Immune Deficiency is a disorder where the immune response is reduced or absent. PIDs are caused by defects in the genes that control the immune system, so people with PID are born missing some or all of the parts of the immune system.
Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for PID patients and their families.
WORLD PI WEEK 22-29 APRIL 2017
IDFA WEEK 1 VIDEO 1: Teal’s Story– a young adult patient with CGD (Chronic Granulomatous Disease)
Visit our World PI Week page
IMMUNOGLOBULIN NEWS: INTRAGAM10
INTRAGAMP changes to INTRAGAM10. From March, IntragamP will be replaced by Intragam10. Read More
SUPPORT NEWBORN SCREENING FOR SCID!
Support newborn screening for Severe Combined Immune Deficiency (SCID): Let’s stop Australian infant deaths from the “bubble boy” disease. View the IDFA SCID Newborn Screening Position Statement, find out more or sign the form and/or donate to research.
Brittany Noble, 19 August at 12:47 · SCID is a life-threatening condition which is present from birth. If undetected or unsuccessfully treated, SCID is fatal in 100% of cases, usually before a baby’s first birthday. I wasn’t aware of this condition until the loss of my beautiful nephew Harrison in 2010. Harrison’s mother, my sister Bianca Noble has bravely shared his story: Read Harrison’s story.
Tell us your story! We are always looking for new member stories to publish.
PI AWARENESS PIN
Purchase a Primary Immune Deficiency Awareness PIN . Cost is $10 and is tax deductible. Can you sell a box for us? IDFA thanks Grifols for the grant to enable us to design this unique PID symbol.
The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources
Read our latest newsletter: IDFA 2016 Xmas Newsletter
IDFA is a Registered Charity.
International Entertainment raise funds on IDFA’s behalf running: Circus Quirkus, Razzamatazz and World of Magic shows in NSW, VIC, QLD, ACT and TAS. More information here.
Recent updates - World PI Week is coming 22-29 April 2017
Can you help raise awareness of Primary Immune Deficiencies by distributing posters to your GP or hospital infusion unit?
Can you raise money on World PI Day April 29 by Selling the PI Awareness Pin (tax deductible) or collecting donations?
Can you tell your story for any media enquiries we receive on World PI Week?