Welcome to IDFA
The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies -genetic in origin- and Secondary Immune Deficiencies -caused by transplantation, disease (e.g. cancer) or treatment (e.g. chemotherapy).
An Immune Deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency. It is defined by a loss of antibodies or failure of antibody function. The decrease in antibodies causes the immune response to be deficient or absent, resulting in increased susceptibility to infection.
View our info video
Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for patients and their families.
2018 STATE patient meetings: “Beyond Hospital Walls”
This year IDFA will be holding State Patient Meetings.
A Beyond Hospital Walls Sample Program is available.
The dates and times are TBA but please register your interest through the form so we have an idea for numbers and catering. The information will appear below as each meeting is organised.
Adelaide – 14 April register your interest
Brisbane – 24 March register your interest
Canberra – 26 May register your interest
Cairns – TBA
Sydney – TBA
Newcastle – TBA
Melbourne – TBA
Perth – TBA
Hobart – TBA
These events are sponsored by CSL Behring.
View all 4 videos on the World PI Week page
YAM JAM 2018
The young adult conference for 18-30’s will take place this year in Melbourne in July (date TBA). There are Sessions and Discussions for both patients (YAMS) and “plus ones” (partners, besties, parents). We will also be making a Music Video for IDFA. Plus ones must pay for their own transport to and from the venue, room costs if requiring a separate room and $50 towards the conference dinner. More details soon!
IMMUNOGLOBULIN NEWS: INTRAGAM10
INTRAGAMP changes to INTRAGAM10. From March, IntragamP will be replaced by Intragam10. Read More
SUPPORT NEWBORN SCREENING FOR SCID!
Support newborn screening for Severe Combined Immune Deficiency (SCID): Let’s stop Australian infant deaths from the “bubble boy” disease. View the IDFA SCID Newborn Screening Position Statement, find out more or sign the form and/or donate to research.
Brittany Noble, 19 August at 12:47 · SCID is a life-threatening condition which is present from birth. If undetected or unsuccessfully treated, SCID is fatal in 100% of cases, usually before a baby’s first birthday. I wasn’t aware of this condition until the loss of my beautiful nephew Harrison in 2010. Harrison’s mother, my sister Bianca Noble has bravely shared his story: Read Harrison’s story.
Tell us your story! We are always looking for new member stories to publish.
PI AWARENESS PIN
Purchase a Primary Immune Deficiency Awareness PIN . Cost is $10 and is tax deductible. Can you sell a box for us? IDFA thanks Grifols for the grant to enable us to design this unique PID symbol.
The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources
Read our latest newsletter: IDFA 2018 Newsletter
IDFA is a Registered Charity.
International Entertainment raise funds on IDFA’s behalf running: Circus Quirkus, Razzamatazz and World of Magic shows in NSW, VIC, QLD, ACT and TAS. More information here.
Recent updates - World PI Week is coming 22-29 April 2017
Can you help raise awareness of Primary Immune Deficiencies by distributing posters to your GP or hospital infusion unit?
Can you raise money on World PI Day April 29 by Selling the PI Awareness Pin (tax deductible) or collecting donations?
Can you tell your story for any media enquiries we receive on World PI Week?