Welcome to IDFA
The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies -genetic in origin- and Secondary Immune Deficiencies -caused by transplantation, disease (e.g. cancer) or treatment (e.g. chemotherapy).
An Immune Deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency. It is defined by a loss of antibodies or failure of antibody function. The decrease in antibodies causes the immune response to be deficient or absent, resulting in increased susceptibility to infection.
Giving Tuesday …. donate here
World PI Week 2019
World PI Week is here again 22-29th April 2019.
In partnership with CIRCA we are building on our patient storybook that we launched for Rare Disease Day.
We welcome patients and carers or family members to tell their immune deficiency story.
Tell us your story and mail us some photos to be included.
Has your immunoglobulin treatment stopped?
See here for who to contact and suggested letter.
IDFA 2019 National Conference – 12-14th April. Report coming soon!
View our info video
Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for patients and their families. Become a member of IDFA
Cards, Mugs, TShirts, Totes, Caps… View and order here
There are 3 new IPOPI Booklets available:
- CVID Management
- A Guide for Internal Medicine Specialists
- HSCT (Haematopoetic Stem Cell Transplantation)
Order or download here
IDFA Music Video “I Don’t Feel Alone”
We are excited to present the IDFA Music Video, “I Don’t Feel Alone” made by our YAMS (young adult members) at the IDFA YAM JAM Conference 2018. The words are written by the YAMS and it features Imogen Abba, Tokana Hennequin, Christopher Bowd and Ben Johnson on vocals, YAMs and staff on chorus and the YAM JAM dancers and scenes from the conference. We hope you enjoy it (click on picture below for link).
Blood Donor “thankyou” cards
Immune Deficiency Information postcards
We have published a new info postcard and new booklets – Secondary Immune Deficiency, Allergies, Infections, Psychological Support and IDFA Strategic Plans. Order here.
The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources
SUPPORT NEWBORN SCREENING FOR SCID!
Support newborn screening for Severe Combined Immune Deficiency (SCID): Let’s stop Australian infant deaths from the “bubble boy” disease. View the IDFA SCID Newborn Screening Position Statement, find out more or sign the form and/or donate to research.
Tell us your story! We are always looking for new member stories to publish.
PI AWARENESS PIN
Purchase a Primary Immune Deficiency Awareness PIN . Cost is $10 and is tax deductible. Can you sell a box for us? IDFA thanks Grifols for the grant to enable us to design this unique PID symbol.
Read our latest newsletter: IDFA 2018 Newsletter.1
IDFA is a Registered Charity.