Welcome to IDFA

IDFA MEMBERSThe Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies (PID).

An immune deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency.

A Primary Immune Deficiency is a disorder where the immune response is reduced or absent. PIDs are caused by defects in the genes that control the immune system, so people with PID are born missing some or all of the parts of the immune system.

Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for PID patients and their families.

SUPPORT NEWBORN SCREENING FOR SCID! 

Harrison

Harrison

Support newborn screening for Severe Combined Immune Deficiency: Let’s stop Australian infant deaths from the “bubble boy” disease. Find out more or sign the form and/or donate to research.

Read this family’s story of loss and sadness because of Severe Combined Immune Deficiency. By sharing this real life story we hope to raise more awareness and understanding around why we are supporting Newborn Screening tests for SCID in Australia. Please feel free to share this on your Facebook page to help others understand what we are trying to achieve. Thank you.

Brittany Noble,  19 August at 12:47 · Severe Combined Immunodeficiency Disease (SCID) is a life-threatening condition which is present from birth. If undetected or unsuccessfully treated, SCID is fatal in 100% of cases, usually before a baby’s first birthday. I wasn’t aware of this condition until the loss of my beautiful nephew Harrison in 2010. Harrison’s mother, my sister Bianca Noble has bravely shared his story:   Read Harrison’s story.

Become a member of IDFA

Make a donation to IDFA

Purchase a Primary Immune Deficiency Awareness PIN

TELL YOUR STORY! We are looking for new member stories for publication on our website and in a booklet.

WANTED: FOR IDFA XMAS NEWSLETTER – MEMBER STORIES –   “A Closer Look at IDFA Members”. Stories from all ages welcome! Submit your Closer Look story.

 FUNDRAISING

IDFA Awareness Pin is now available for purchase. Cost is $10 and is tax deductible. Order here.

RESOURCES

The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources

WORLD PI WEEK 22-29 APRIL

World PI Week 

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Recent updates - A Closer Look

IDFA has a new section in its Newsletter called “A Closer Look at IDFA Members”. The section is for all ages and we encourage kids and adults to join in. For your chance to appear in the Newsletter, please complete the Closer Look Form  Thank you for your participation! Any queries please contact [email protected]

 

 

Posted on November 4th, 2016 by Christine in category: Uncategorized | No Comments »

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