Welcome to IDFA

IDFA MEMBERS

The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies -genetic in origin- and Secondary Immune Deficiencies -caused by transplantation, disease (e.g. cancer) or treatment (e.g. chemotherapy).

An Immune Deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency. It is defined by a loss of antibodies or failure of antibody function. The decrease in antibodies causes the immune response to be deficient or absent, resulting in increased susceptibility to infection.

View our info video 

Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for patients and their families. Become a member of IDFA

 

NEW RESOURCES

IDFA Music Video “I Don’t Feel Alone”

We are excited to present the IDFA Music Video, “I Don’t Feel Alone” made by our YAMS (young adult members) at the IDFA YAM JAM Conference 2018. The words are written by the YAMS and it features Imogen Abba, Tokana Hennequin, Christopher Bowd and Ben Johnson on vocals, YAMs and staff on chorus and the YAM JAM dancers and scenes from the conference. We hope you enjoy it (click on picture below for link).

Blood Donor “thankyou” cards

International Plasma Awareness Week is 8-12th October. IDFA are supporting PPTA’s (Plasma Proteins Therapeutics Association) “How’s your day” initiative and have produced thankyou cards for blood donors. They are free to members. Why not drop in to your local Red Cross collection centre, meet some donors, have a chat and give them a thankyou card! Order here

Immune Deficiency Information postcards

 

We have published a new info postcard and new booklets – Secondary Immune Deficiency, Allergies, Infections, Psychological Support and IDFA Strategic Plans. Order here.

 

The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources

REPORTS

WPIWReport2018

APSID Report 2018 Chongqing – Asia Pacific Society for Immunodeficiencies 2018 Congress, Chongquing China

PPTA Report June 2018 – Plasma Proteins Therapeutic Association, Washington DC

PPTA Video interview topic summary June 2018– this is a summary of my interview at the Plasma Proteins Therapeutic Association, Washington DC

SAVE THE DATE… IDFA National Conference 2019

IDFA National Conference 2019, 13-14 April 2019, Novotel Brisbane.  Watch this space for more information!

SUPPORT NEWBORN SCREENING FOR SCID! 

Harrison

Harrison

Support newborn screening for Severe Combined Immune Deficiency (SCID): Let’s stop Australian infant deaths from the “bubble boy” disease. View the IDFA SCID Newborn Screening Position Statement, find out more or sign the form and/or donate to research.

Brittany Noble,  19 August at 12:47 · SCID is a life-threatening condition which is present from birth. If undetected or unsuccessfully treated, SCID is fatal in 100% of cases, usually before a baby’s first birthday. I wasn’t aware of this condition until the loss of my beautiful nephew Harrison in 2010. Harrison’s mother, my sister Bianca Noble has bravely shared his story: Read Harrison’s story.

Tell us your story! We are always looking for new member stories to publish.

IDFA Pin

IDFA Pin

PI AWARENESS PIN

Purchase a Primary Immune Deficiency Awareness PIN . Cost is $10 and is tax deductible. Can you sell a box for us? IDFA thanks Grifols for the grant to enable us to design this unique PID symbol.

NEWSLETTERS

Read our latest newsletter: IDFA 2018 Newsletter.1

DONATE

 

Make a donation to IDFA

IDFA is a Registered Charity.

Find us on the ACNC Charity Register Summary and the ASIC Company Summary IDFA

SPONSORS

CSL Behring

CSL Behring

Grifols

Grifols

Shire Logo_Blue

Shire Logo_Blue

INTERNATIONAL  ENTERTAINMENT

International Entertainment

 

International Entertainment raise funds on IDFA’s behalf running: Circus Quirkus,  Razzamatazz  and World of Magic shows in NSW, VIC, QLD, ACT and TAS. More information here.

 

 

    

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Recent updates - World PI Week is coming 22-29 April 2017

Can you help raise awareness of Primary Immune Deficiencies by distributing posters to your GP or hospital infusion unit?

Can you raise money on World PI Day April 29 by Selling the PI Awareness Pin (tax deductible) or collecting donations?

Can you tell your story for any media enquiries we receive on World PI Week?

Posted on February 16th, 2017 by Christine in category: Uncategorized | No Comments »

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