Welcome to IDFA
An immune deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency. A Primary Immune Deficiency is a disorder where the immune response is reduced or absent. PIDs are caused by defects in the genes that control the immune system, so people with PID are born missing some or all of the parts of the immune system.
Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for PID patients and their families.
SUPPORT NEWBORN SCREENING FOR SCID!
Support newborn screening for Severe Combined Immune Deficiency: Let’s stop Australian infant deaths from the “bubble boy” disease. View the IDFA SCID Newborn Screening Position Statement, find out more or sign the form and/or donate to research.
Read this family’s story of loss and sadness because of Severe Combined Immune Deficiency. By sharing this real life story we hope to raise more awareness and understanding around why we are supporting Newborn Screening tests for SCID in Australia. Please feel free to share this on your Facebook page to help others understand what we are trying to achieve. Thank you.
Brittany Noble, 19 August at 12:47 · Severe Combined Immunodeficiency Disease (SCID) is a life-threatening condition which is present from birth. If undetected or unsuccessfully treated, SCID is fatal in 100% of cases, usually before a baby’s first birthday. I wasn’t aware of this condition until the loss of my beautiful nephew Harrison in 2010. Harrison’s mother, my sister Bianca Noble has bravely shared his story: Read Harrison’s story.
Read our latest newsletter: IDFA 2016 Xmas Newsletter
Tell us your story! We are always looking for new member stories to publish.
Purchase a Primary Immune Deficiency Awareness PIN . Cost is $10 and is tax deductible. IDFA thanks Grifols for the grant to enable us to design this unique PID symbol.
The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources
WORLD PI WEEK 22-29 APRIL
International Entertainment raise funds on IDFA’s behalf running Circus Quirkus, Razzamatazz and World of Magic shows in NSW, VIC, QLD, ACT and TAS.
More information here.
Recent updates - IDFA’s 2016 Newsletter is here!
Catch up on whats been happening at IDFA this year.