Welcome to IDFA


The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies -genetic in origin- and Secondary Immune Deficiencies -caused by transplantation, disease (e.g. cancer) or treatment (e.g. chemotherapy).

An Immune Deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency. It is defined by a loss of antibodies or failure of antibody function. The decrease in antibodies causes the immune response to be deficient or absent, resulting in increased susceptibility to infection.

View our info video 

Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for patients and their families.


QUILT RAFFLE! (3 handmade Quilts)



More information and pictures

Raffle drawn 14 April 2018!


2018 STATE patient meetings: “Beyond Hospital Walls”           

This year IDFA will be holding State Patient Meetings.

A Beyond Hospital Walls Sample Program is available.

The dates and times are TBA but please register your interest through the form so we have an idea for numbers and catering. The information will appear below as each meeting is organised.

Adelaide – 14 April  register your interest

Brisbane – 24 March register your interest

Canberra – 26 May register your interest

IDFA Videos

View all 4 videos on the  World PI Week page

YAM JAM 2018

The young adult conference for 18-30’s will take place this year in Melbourne in June 23-24th. There are Sessions and Discussions for both patients (YAMS) and “plus ones” (partners, besties). We will also be making a Music Video for IDFA. Plus ones must pay for their own transport to and from the venue, room costs if requiring a separate room and $50 towards the conference dinner. If the plus one is a YAM, IDFA will cover the costs.

This conference is for our YAMS only (Young adult members 18-30). It is not intended for parents. Parents may accompany their YAM but will not be able to take part in the conference.

More details soon!

Register your interest.


INTRAGAMP changes to INTRAGAM10. From March, IntragamP will be replaced by Intragam10. Read More




Support newborn screening for Severe Combined Immune Deficiency (SCID): Let’s stop Australian infant deaths from the “bubble boy” disease. View the IDFA SCID Newborn Screening Position Statement, find out more or sign the form and/or donate to research.

Brittany Noble,  19 August at 12:47 · SCID is a life-threatening condition which is present from birth. If undetected or unsuccessfully treated, SCID is fatal in 100% of cases, usually before a baby’s first birthday. I wasn’t aware of this condition until the loss of my beautiful nephew Harrison in 2010. Harrison’s mother, my sister Bianca Noble has bravely shared his story: Read Harrison’s story.

Tell us your story! We are always looking for new member stories to publish.




Purchase a Primary Immune Deficiency Awareness PIN . Cost is $10 and is tax deductible. Can you sell a box for us? IDFA thanks Grifols for the grant to enable us to design this unique PID symbol.


The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources

Read our latest newsletter: IDFA 2018 Newsletter

Become a member of IDFA



Make a donation to IDFA

IDFA is a Registered Charity.

Find us on the ACNC Charity Register Summary and the ASIC Company Summary IDFA


CSL Behring

CSL Behring



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Shire Logo_Blue


International Entertainment


International Entertainment raise funds on IDFA’s behalf running: Circus Quirkus,  Razzamatazz  and World of Magic shows in NSW, VIC, QLD, ACT and TAS. More information here.




IDFA (@theidfa)




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Recent updates - World PI Week is coming 22-29 April 2017

Can you help raise awareness of Primary Immune Deficiencies by distributing posters to your GP or hospital infusion unit?

Can you raise money on World PI Day April 29 by Selling the PI Awareness Pin (tax deductible) or collecting donations?

Can you tell your story for any media enquiries we receive on World PI Week?

Posted on February 16th, 2017 by Christine in category: Uncategorized | No Comments »

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