Welcome to IDFA
The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies (PID) and Secondary Immune Deficiencies .
An Immune Deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency. It is defined by a loss of antibodies or failure of antibody function. The decrease in antibodies causes the immune response to be deficient or absent, resulting in increased susceptibility to infection. Immunodeficiency disorders are either Primary (of genetic origin) or Secondary (due to treatment such as chemotherapy, transplantation or disease).
Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for PID patients and their families.
SYDNEY CHARITY FUNDRAISING DINNER DANCE
Castle Hill RSL October 7th 2017.
More information here
The International Primary Immunodeficiencies Congress will be held in Dubai
Date: 8-10 November 2017
Venue: Crowne Plaza Hotel – Dubai Festival City, UAE
The congress programme is geared towards clinicians, nurses and patients. It features an array of world renowned expert physicians and leading stakeholders from the PID community who will share their experience and provide invaluable perspectives on major clinical considerations: – Early detection for optimal care; – Transplant advances; – PID clinical priorities by world region – Novel treatments; – PID care and ethical issues… among many others important topics! More information.
WORLD PI WEEK 22-29 APRIL 2017
IDFA WEEK 1 VIDEO 1: Teal’s Story– a young adult patient with CGD (Chronic Granulomatous Disease).
View all 4 videos on the World PI Week page
IMMUNOGLOBULIN NEWS: INTRAGAM10
INTRAGAMP changes to INTRAGAM10. From March, IntragamP will be replaced by Intragam10. Read More
SUPPORT NEWBORN SCREENING FOR SCID!
Support newborn screening for Severe Combined Immune Deficiency (SCID): Let’s stop Australian infant deaths from the “bubble boy” disease. View the IDFA SCID Newborn Screening Position Statement, find out more or sign the form and/or donate to research.
Brittany Noble, 19 August at 12:47 · SCID is a life-threatening condition which is present from birth. If undetected or unsuccessfully treated, SCID is fatal in 100% of cases, usually before a baby’s first birthday. I wasn’t aware of this condition until the loss of my beautiful nephew Harrison in 2010. Harrison’s mother, my sister Bianca Noble has bravely shared his story: Read Harrison’s story.
Tell us your story! We are always looking for new member stories to publish.
PI AWARENESS PIN
Purchase a Primary Immune Deficiency Awareness PIN . Cost is $10 and is tax deductible. Can you sell a box for us? IDFA thanks Grifols for the grant to enable us to design this unique PID symbol.
The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources
Read our latest newsletter: IDFA 2016 Xmas Newsletter
IDFA is a Registered Charity.
International Entertainment raise funds on IDFA’s behalf running: Circus Quirkus, Razzamatazz and World of Magic shows in NSW, VIC, QLD, ACT and TAS. More information here.
Recent updates - World PI Week is coming 22-29 April 2017
Can you help raise awareness of Primary Immune Deficiencies by distributing posters to your GP or hospital infusion unit?
Can you raise money on World PI Day April 29 by Selling the PI Awareness Pin (tax deductible) or collecting donations?
Can you tell your story for any media enquiries we receive on World PI Week?