Welcome to IDFA
The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies -genetic in origin- and Secondary Immune Deficiencies -caused by transplantation, disease (e.g. cancer) or treatment (e.g. chemotherapy).
An Immune Deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency. It is defined by a loss of antibodies or failure of antibody function. The decrease in antibodies causes the immune response to be deficient or absent, resulting in increased susceptibility to infection.
This is a worrying time for patients with primary and secondary immune deficiencies and their families. Please see information for Pi patients.
Coronavirus effect on IDFA
Due to coronavirus-19, and the resulting economic downturn, we are now seeing many businesses not surviving. With shutdowns and no customers, there will be many more to come. For not for profit organisations, this is a very real threat. IDFA is feeling the financial effects severely. As a not for profit, with no government funding; our grants, fundraising sales and donations have been severely impeded by this tragedy. Our current activities are focussed on advocacy and support for our members via letters, phone calls and social media. Any DONATION (even $2 is tax deductible) is appreciated at this time to keep us going. Consider donating $30 and receive a World PI Week Pack! Use PIPack as a reference! For the pack and products, Order here
World PI Week 2020
We are looking for volunteers to come and spend a day in the office, making up packs to send to GPs and health professionals in WPIWk. Please let us know if you are interested at firstname.lastname@example.org
SCID Newborn screening update
This video discusses Severe Combined Immune Deficiency (SCID), the tabling of the ACT petition and why all Australian States must add SCID to the newborn spot screening program. Support newborn screening for Severe Combined Immune Deficiency (SCID): Let’s stop Australian infant deaths from the “bubble boy” disease. Petitions have been tabled in NSW and the ACT. WE NEED YOUR HELP! Please download and sign a petition for your State. Read about SCID and download petitions to sign
In partnership with CIRCA we are continuing to build our patient storybook.
We welcome patients and carers or family members to tell their immune deficiency story.
Tell us your story and mail us some photos to be included.
Has your immunoglobulin treatment stopped?
See here for who to contact and suggested letter.
IDFA National Conference 2019 – view report
View our info video
Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for patients and their families. Become a member of IDFA
Cards, Mugs, TShirts, Totes, Caps… View and order here
There are 3 new IPOPI Booklets available:
- CVID Management
- A Guide for Internal Medicine Specialists
- HSCT (Haematopoetic Stem Cell Transplantation)
Order or download here
IDFA Music Video “I Don’t Feel Alone”
We are excited to present the IDFA Music Video, “I Don’t Feel Alone” made by our YAMS (young adult members) at the IDFA YAM JAM Conference 2018. The words are written by the YAMS and it features Imogen Abba, Tokana Hennequin, Christopher Bowd and Ben Johnson on vocals, YAMs and staff on chorus and the YAM JAM dancers and scenes from the conference. We hope you enjoy it (click on picture below for link).
Blood Donor “thankyou” cards
Immune Deficiency Information postcards
We have published a new info postcard and new booklets – Secondary Immune Deficiency, Allergies, Infections, Psychological Support and IDFA Strategic Plans. Order here.
The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources
Tell us your story! We are always looking for new member stories to publish.
PI AWARENESS PIN
Purchase a Primary Immune Deficiency Awareness PIN . Cost is $10 and is tax deductible. Can you sell a box for us? IDFA thanks Grifols for the grant to enable us to design this unique PID symbol.
Read our latest newsletter: IDFA 2018 Newsletter.1
IDFA is a Registered Charity.