Welcome to IDFA

IDFA MEMBERS

The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have Primary Immune Deficiencies -genetic in origin- and Secondary Immune Deficiencies -caused by transplantation, disease (e.g. cancer) or treatment (e.g. chemotherapy).

An Immune Deficiency is also commonly referred to as an immune disease, immune disorder or immunodeficiency. It is defined by a loss of antibodies or failure of antibody function. The decrease in antibodies causes the immune response to be deficient or absent, resulting in increased susceptibility to infection.

SCID Newborn screening update

This video discusses Severe Combined Immune Deficiency (SCID), the tabling of the ACT petition and why all Australian States must add SCID to the newborn spot screening program.

Support newborn screening for Severe Combined Immune Deficiency (SCID): Let’s stop Australian infant deaths from the “bubble boy” disease. More information about petitions.

Coronavirus

read the IDFA Position Statement_Coronavirus

World PI Week 2020

We are looking for volunteers to come and spend a day in the office, making up packs to send to GPs and health professionals on WPIWk. Please let us know if you are interested at info@idfa.org.au

IDFA Storybook

In partnership with CIRCA we are continuing to build our patient storybook.

We welcome patients and carers or family members to tell their immune deficiency story.

Tell us your story and mail us some photos to be included.

Has your immunoglobulin treatment stopped?

See here for who to contact and suggested letter.

IDFA National Conference 2019 – view report

IDFA National Conference Report & Aquittal_2019_

View our info video 

Our members range from babies to seniors and are from all over Australia. They have chronic and complex health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their illness. IDFA offers education and social and emotional support for patients and their families. Become a member of IDFA

PRODUCT SALE!

Cards, Mugs, TShirts, Totes, Caps…    View and order here

NEW RESOURCES

There are 3 new IPOPI Booklets available:

  • CVID Management
  • A Guide for Internal Medicine Specialists
  • HSCT (Haematopoetic Stem Cell Transplantation)

Order or download here

IDFA Music Video “I Don’t Feel Alone”

We are excited to present the IDFA Music Video, “I Don’t Feel Alone” made by our YAMS (young adult members) at the IDFA YAM JAM Conference 2018. The words are written by the YAMS and it features Imogen Abba, Tokana Hennequin, Christopher Bowd and Ben Johnson on vocals, YAMs and staff on chorus and the YAM JAM dancers and scenes from the conference. We hope you enjoy it (click on picture below for link).

Blood Donor “thankyou” cards

International Plasma Awareness Week is 8-12th October. IDFA are supporting PPTA’s (Plasma Proteins Therapeutics Association) “How’s your day” initiative and have produced thankyou cards for blood donors. They are free to members. Why not drop in to your local Red Cross collection centre, meet some donors, have a chat and give them a thankyou card! Order here

Immune Deficiency Information postcards

We have published a new info postcard and new booklets – Secondary Immune Deficiency, Allergies, Infections, Psychological Support and IDFA Strategic Plans. Order here.

The IDF patient and family handbook – Australasian edition is now available. IDFA thanks CSL Behring for the grant to publish this resource. Order all resources

REPORTS

Financial Reports

Annual Reports

Event Reports

Read Harrison’s story.               Read Tom’s story – SCID

Tell us your story! We are always looking for new member stories to publish.

IDFA Pin

IDFA Pin

PI AWARENESS PIN

Purchase a Primary Immune Deficiency Awareness PIN . Cost is $10 and is tax deductible. Can you sell a box for us? IDFA thanks Grifols for the grant to enable us to design this unique PID symbol.

NEWSLETTERS

Read our latest newsletter: IDFA 2018 Newsletter.1

DONATE

Make a donation to IDFA

IDFA is a Registered Charity.

Find us on the ACNC Charity Register Summary and the ASIC Company Summary IDFA

SPONSORS

CSL Behring

CSL Behring

Grifols

Grifols

Shire Logo_Blue

Shire Logo_Blue

INTERNATIONAL  ENTERTAINMENT

International Entertainment

International Entertainment raise funds on IDFA’s behalf running: Circus Quirkus,  Razzamatazz  and World of Magic shows in NSW, VIC, QLD, ACT and TAS. More information here.

    

IDFA (@theidfa)

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Posted on April 18th, 2013 by admin in category: | No Comments »

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